Me & my speech.

Posts tagged ‘misdiagnosed’

WHOOPS DISEASE- 7b1. Problems with Diabetes

Many of the issues with diabetes aren’t being discussed here, just how WHOOPS DISEASE really impacts diabetics, people possibilities to get diabetes from WHOOPS DISEASE, and people with WHOOPS DISEASE have greater hassles with their diabetes if they have it. Some aspects of these pages will be shifted into new pages, but not at the moment, sorry for the massive size of this document which still needs fixing for readers.

New Diabetics…

with issues of previous diabetics also.

Some people get diabetes with WHOOPS DISEASE, eventual ‘cure’ treatment for WHOOPS DISEASE should take away the ‘new diabetes’ AND possibly the ‘previous diabetes’ also.  The diabetic issues of Rhapsodie are probable with the new diabetics also, BUT the possibility of returning to normal after WHOOPS DISEASE is ‘cured’ means that the diabetes problems will go away also with those people. This is different for people who have had diabetes.

Previous Diabetics

Rhapsodie has been type 1 diabetic since she was 5, so she reads these symptoms versus her diabetic normality’s.

Sugar & Insulin Use Records

Rhapsodie has, recently, formed a spreadsheet to keep track of the super frequent insulin changes and how these relate with her sugar levels. BUT it takes hours each day to add the numbers and interpret the information beyond normal patterns & cycles. While the spreadsheet can help doctors, for Rhapsodie, she also needs to be watching the Minimed 670G Insulin Pump graph patterns. It’s not the easiest thing in the world and it’s continuous work.

As is mentioned below the coloring added to these charts could be done hourly, but it’s not at present for Rhapsodie the best way to do that. The basal change colors are based on basal (underlying base uses of insulin for life without food as a factor) insulin amount changes. Using the comparisons from the previous days makes it easier to determine how to color versus doing it as the basals are being changed. Other insulin pump systems and sugar checkers could make this easier if the graphs are accurate enough to utilize AND if they are keeping basal rates in record with the other information.

Some insulin pump options & sugar checker options, like the CGM systems which may OR may not be insulin pump integrated, also have graphing which may allow memory systems to keep records of the basal patterns corresponding to living with diabetes also.

CGM Information

You can find information using the search engines you prefer to find

  • CGM’s; OR Continuous Glucose Monitors involve poking into the sking so they aren’t loved OR really even liked by me causing more holes in my body every time they are used.
    • The NO Prick Sugar Checkers, I’ve located in research are really not ‘approved’ by the United States FDA maybe comments can cause them to do more approving. They haven’t approved the 3 I like the most yet, but with checking my sugar up to 23 times a day recently, then poking in the sensor device, then poking in the insulin needles regularly my body is more scarred than not from needle pricks. The ones I like may OR may not be able to be linked to insulin pumps, they may OR may not be able to share that information gotten with computer systems but some of them have that available with NO PRICKING AT ALL! More No Prick Links below!


But here are some links to options I’ve heard about and have observed on occasion.

Some Insulin Pump & CGM Connected Options

Other Pricking CGM options without insulin systems connected

No Prick Glucose Monitors which may work as well with CGM &/OR insulin pumps

  • GlucoTrack– Clips on ear for readings AND may be approved already with the FDA
    • Clips on ear, reads the numbers within one minute, uses a combination of Ultrasonic, Electromagnetic, and Heat capacity. (thermal) for reading the sugars and allows USB connection to cell phone, tablets, computers for charting the information, and will allow numbers to be added manually to the pump. Problem only reads when used, but that’s fine for the use with the sensor & the ear clip may hurt in repeated uses over weeks, months & years of time.
  • CNOGA– BG meter is NOT approved by FDA for blood glucose monitoring. BUT their other machines offer that as an option with the devices, but the programming needs to be loaded for this option to be active-
    • VSM- Vital Signs Monitor
      • VSM intended to suit the customers specific needs and includes 3 versions according to customers’ requirements. The basic VSM measures 3 bio-parameters includes Pulse, Blood pressure and Oxygen saturation (SpO2). Additional parameters such as Blood gases or Hematology parameters can be added to the device [BUT you need to ask, to get those, the U.S. FDA has not approved this for sugar checking.] VSM approved for marketing in more than 37 countries (Certifications: CE, CFDA , Anvisa).Cnoga Medical is the only company in the world approved by the U.S FDA for cuff less monitoring of blood pressure & Pulse
        • Pulse
        • Oxygen saturation (SpO2)
        • Continuous, Non-invasive Cuff-free Blood Pressure
        • [BUT NOT for sugar checking yet!]
    • COG- Combo Glucometer (CoG) [Not U.S. FDA approved, stupid]Place your finger, close the lid and measurement start automatically …within 1 minute.
      • Non-invasive Glucometer
      • No pricking, No pain
      • Personal Device
      • For Adult Diabetics (age>18)
      • Suitable for Type1 and Type2
      • Small and Lightweight – ˜100g
      • Compact and Easy-to-use
      • Unlimited usage life
      • 500 Measurement memory
    • MTX- Matrix Monitor- approved in U.S. but super complicated for simple glucose measures because of the multiples tested at one time
      • Continuous, Non-invasive and Cuff-free Blood Pressure
      • Non-invasive Hemoglobin,
        • Hematocrit, and
        • RBC
      • Non-invasive Blood Gases (Ph, PCO2, PO2, O2&CO2 Content)
      • Non invasive Cardiac Output , Stroke Volume, MAP
      • Less than 60 seconds test
      • Four LED lights shine wavelengths from visual light to infrared light through the fingertip.
      • As the light wave pass through the fingertip, some of it is absorbed and the light signal is changed.
      • Next, a camera sensor detects the changed light signal in real time.
      • Using patented algorithms and a vast amount of data MTX analyze the correlation between the signal and bio parameters
  • Gluco-wise– In development
    • can be used on ear OR with hands using radio waves and totally non-invasive, but still in testing, can allow the numbers to be manually added to the pump. Problem only reads when used, but that’s fine with the sensor for pump in use also.
  • GlucoTrack– Clips on ear for readings AND may be approved already with the FDA
    • Clips on ear, reads the numbers within one minute, uses a combination of Ultrasonic, Electromagnetic, and Heat capacity. (thermal) for reading the sugars and allows USB connection to cell phone, tablets, computers for charting the information, and will allow numbers to be added manually to the pump. Problem only reads when used, but that’s fine for the use with the sensor & the ear clip may hurt in repeated uses over weeks, months & years of time.
  • Lightouch non-invasive glucose monitoring device
  • More No-Prick Options Info

Rhapsodie’s Insulin Changes & Sugar Hassles with WHOOPS DISEASE

For Rhapsodie’s life with WHOOPS DISEASE and insulin changes having records of Blood Glucose (BG) tests for accurate uses she has built an Excel Spreadsheet chart . For her it’s generally a follow up used to double check her basal & sugar record patterns, BUT it could help others to set up their patterns if they are aware of things before they get hit with them.  A technologist reviewing Rhapsodie’s problems with the ‘auto-mode’ option of the 670G told her, “ I am not a doctor, but these numbers show me that your body is responding a lot faster than this pump is programmed to work with the automode in action.” This has meant my actions NOT using automode have kept me healthier.

Finger Pricking Hassles

I don’t like other features of automode also, but Minimed does take comments and put them on record, so some of my suggestions have worked, my sugar reports through their systems now include more of my finger prick measures.

  • I’m pricking my fingers about 11 times a day, that’s a big problem with the sugar hassles, because my skin is dryer and scarring is greater.
    • I try to remember to change my fingers regularly, but this sugar checker is a problem for using my lower ears, BUT you might find pricking your lower ear lobes works well with less finger pricking needed. The pain sensors at the lower ear lobes are less than on the fingers. The edges of the ears beneath an earring hole are better locations than higher, because pain sensitivity goes up the higher up the ear, the closer to ear stiffness you get.

Other WHOOPS DISEASE Sugar Oddities & Hassles

I’m sorry everyone, I’ve only been handling the diabetes by Minimed Insulin Pumps for over 20 years. That has meant, with more recent machines, my sugar checker in communicating with the pump have allowed my doctors some records to use. BUT I haven’t taken the time with WHOOPS DISEASE to chart the information too accurately until just recently. And (more…)

#07- Inaccurate PAIN Ratings with NO Applicable Associations

Continuing as begun from post #06- Inaccurate PAIN Assessments because of no Patient Pain UnderstandingAs stated previously ‘with no relational corresponding pain chart there is more space for inaccuracies.’ There is also more likelihood of not doing more work based on the inaccurate assessments already made and reported on by doctors.  This in turn enhances the likelihood that a basic to care for problem is made worse, like I am having.

More Than the Basic Details For Pain Assessments- Dr. Savage

There are also the depth details of pain assessments done that do not necessarily have corresponding values for all people.  This article for assessing chronic pain states, “For a doctor to get a good sense of your chronic pain, just pointing to a single face or number isn’t enough. Your doctor will need some context, says Seddon R. Savage, MD, incoming president of the American Pain Society and an adjunct associate professor of anesthesiology at Dartmouth Medical School in Hanover, N.H. “I ask people to remember the worst pain they’ve ever experienced in their lives,’ Savage tells WebMD. ‘It might be a kidney stone or childbirth. That level of pain becomes the benchmark to which we compare the current pain.’”

I never was pregnant, and I have never had a kidney stone, so my estimate doesn’t even relate to others that way if it was ever requested. Other examples like the UTI & Dental Care without Novacaine or pain may assist doctors, but they are still hesitant about accepting comparables when they don’t associate with those mentally.

For Patients- Describing Your Chronic Pain

As we have already seen with the information of this document, the assessments by doctors are based on the searches they have done, but “Your doctor needs to know not just how much the pain hurts, but how the pain hurts, says Savage [from the article from WebMD entitled Using the Pain Scale: How to Talk About Pain.

The kind of pain you’re feeling can say a lot about the cause, experts say. Cohen says that pain that’s caused by tissue injury — like arthritis or a back injured while shoveling snow — tends to be like a dull ache.

But nerve pain, which could be caused by many conditions, such as diabetes and carpal tunnel syndrome, typically causes a more distinctive shooting pain. Others describe it as burning, buzzing, or electrical pain. Nerve pain is also associated with other sensations that aren’t painful in themselves, like tingling or numbness, Cohen says.

Savage says that it’s also important to discuss any variations in your pain. How does it change during the day? What makes it hurt more? What makes it hurt less?

When you see a pain expert, go in prepared. Be ready to describe your chronic pain, as specifically as you can, along with details about when the pain started. The more information you have, the easier it will be for your doctor to help treat your pain…”

The stink of this is that doctors assess a person as having chronic pain, without ever even referring the patient to a PAIN EXPERT.  In fact there may be legitimate pain issues that are totally ignored, like the fact that a broken bone happened, but there are multiple bones in the area and the assessments of  X-rays, CT scans, and MRI tests were not ever examined by a person who looked at the correct placement of the pain.

An estimated doctoral assessment of chronic pain does not mean that the pain is constant or consistently the same or in the exact same location, but without an accurate way of making assessments, doctors are likely to do what is easy instead of what is needed.  The WebMD article continues with more information of great value for people seeking to get treatment that is accurate.  But all of the wonderful advice of the article  WILL ONLY WORK IF the patient persists in working at getting accurate assessments AND doesn’t fall onto the prescribed drugs as a real treatment.

How Does Your Chronic Pain Affect You?

Beyond the severity and the type of chronic pain, there’s a third factor you need to discuss. “It’s really important to talk to your doctor about how your pain affects your life,” says Savage. It’s a crucial and often overlooked detail… Savage says that you should think about the specific ways your chronic pain is affecting you.

  • Does pain wake you up at night?
  • Has chronic pain made you change your habits?
  • Do you no longer go on walks because the pain is too severe?
  • Has it affected your performance on the job — maybe even putting your ability to work in jeopardy?

Giving specifics about how your chronic pain is impinging on your life and changing your behavior is key, Savage says. ‘It helps your doctor understand how much you’re suffering and appreciate the pain as [only part of the] problem that needs treatment,’ she tells WebMD.”

Notice how I varied that doctor’s statement.  It was done because my doctors have taken it upon themselves to offer assessments based on their inaccurate work and because I had not read through this article with articulation for the types of pain to share previously.  This means there is a need for doctors to supply for patient’s corresponding information that can be related to by the doctor…

Associated Posts

Please forgive me, but you’ll likely want to right click and open in a new tab, because the click link MAY NOT WORK.

#01. Inaccurate PAIN Assessments CAN CAUSE MORE BODY DAMAGE

#02- PAIN Assessments Corresponding with UTI’s

#03. Inaccurate PAIN Assessments with A HIGH PAIN Tolerance

#04- Inaccurate PAIN Assessments with JUST Rate Pain from 0 to 10

#05- Inaccurate Doctoral PAIN Assessments based on Guesses

#06- Inaccurate PAIN Assessments because of no Patient Pain Understanding

#07- Inaccurate PAIN Ratings with NO Applicable Associations

#08- Inaccurate PAIN Assessments MADE a BIT Better

#09- Detailing Diaries Could Limit Inaccurate PAIN Assessments

#10- A PAIN & Injury Diary MAY Change Inaccurate Doctoral ASSESSMENTS

Rhapsodie’s Visual PAIN Diary- From September 2013 into April 2017

 Rhapsodie’s ideas to improve Medical ASSESSMENTS by doctors

PAIN Variables



WHOOPS DISEASE, what is it?  Well it’s what I’ve named what is as yet a disease listed as unknown by the majority of medical society.  Nobody is looking for the symptoms and I got sick from being sneezed on.

Do you know how easy a sneeze crosses the air?

Ive affected my kitty? By sneezing on him and making his life horrid. And he shows the male signs, that’s for the following post because Whoops disease symptoms for males and females are different, An Arrow-b here’s a couple of links to find out the details I’ve lived with.

Me again 2015

ME- 2015

I’ve been sick for the last 10 years, first from May or was it July 2008 and of course I’m aging too, we all are, but nothing is so abnormal as to seem wrong for anyone but me.


  1. Inhaling someone else’s sneeze juice OR drinking the fuzzy pead on water in the TROPICS.
  2. Feeling not right within a couple of hours. Generally noticed within days or weeks.
  3. Congestion in the lungs, which generally begins at the start progressing into colds within the first 3 to 6 months that continue can, and for me Rhapsodie McClintick did turn into bronchitis or pneumonia symptoms within the first 1 TO 2 years and it continues… so it’s viewed as an allergy by doctors after the bronchial and pneumatic treatments failthen later they progress to treating you with asthma inhalers which only increase lung space for the parasites to gain fluid from blood out of,
    • the lung coughs come out crystal clear and dry to white flaky crud.
    • The only cold treatment that works is
        • Cider vinegar & honey help it taste good, and the Cider vinegar and honey is GREAT for the ACID REFLUX.
        • This does lead to Asthma diagnosis’ by doctors that don’t do full scale proper tests with proper equipment. Within the first 2 to 3 years.
        • BECAUSE IT IS NOT ASTHMA! THE DRUGS DO NOT WORK for more than making more lung space for the microscopic organisms that have invaded your lungs.
        • The dose for uses is a lot less than packages recommend, but that’s healthier for users. I only use 10 drops of the Swanson’s Liquid Licorice Root extract when the packaging says 48 to 56 as a dose.
    • SNEEZES that start and grow and grow calm down and repeatedly for some years passing on more disease for others even the animals in your life.
      • The early sneezes result in crystallizing looks on the fluids that are expelled and dry on darker materials also, like with coughs in the earlier stages.
  4. Acid Re-flux begins, if you don’t already have it, about 2 to 3 years into the disease and it remains throughout. It will eat away your vocal system also. The acid re-flux is because your lungs absorb moisture while you sleep as well as while you’re awake. During sleep the ‘acid re-flux’ happens because your lungs are breathing in moisture from the stomach area, thus causing acid re-flux, so the treatment with a daily dose before bed of:
    • 2 tsp. CIDER VINEGAR &
    • 5 tsp. of real HONEY,
    • 1cup hot water, and
    • Aloe juice to cool the drink AND soothe the throat
      • These combined are a great ‘cheap’ and healthier help against acid re-flux.
      • My sore throats, resulting from untreated acid re-flux, because I didn’t recognize the symptoms of stinky mouth, sore throat, and other things.
      • Additionally the AND mouth dryness is not assisted by water, but by milk, so more liquid is drunk that’s not calorie free.
      • BADLY
        • The over the counter medications, are only for use for a limited time. AND
        • The ‘medicine’ treatment above enhances the potassium absorption in your system, SO
      • it’s better for you if you’re in danger of kidney disease OR want a continual treatment to avoid the ‘acid-re-flux drugs’ when you can use natural treatment right before when you brush your teeth.
        • This is done to keep the acid of the cider vinegar, less with the unpasteurized from eating at your teeth, because the brushing and rinsing of your mouth with water should minimize the effects of the acid, and doing it right before bed is the best for sleep time acid-re-flux problems.
  5. Bunions Begin around the same time after the acid re-flux starts.
    • My family doesn’t have bunions, and I do now, this may be true for everyone, but it really helps to avoid having surgery to remove the bunions when after the disease is treated properly they disappear.
    • b. bunions on both feet
  6. Higher sugars above 120 but below 130 have been found from Whoops disease:
    • Just recently the doctors have rearranged their diagnosis for Type 1 diabetes, but I still believe that anything, consistently, over 130 is unhealthy,
    • anything above 120 is slightly uncomfortable, it gets more so the higher the sugar is.
  7. Itchy skin that both males and females get from dry skin is very common. When the skin feels itchy DO NOT SCRATCH IT WITH YOUR NAILS or ANY OTHER SHARP OBJECT. Instead find a roughly textured cloth or use your fingers to rub away the itch.  This also works with bug bites, because it releases the area inflammation that generally adds to itchiness, but it doesn’t raise up more blood that will increase the inflammation in the healing processes.
    • There is an additional itch to worry about also with this disease.
      • Initially, about year 2 to 4, the bug feet on the skin itchies, with NO bugs were light and I rubbed those areas, but in 3 areas I scratched- the end of my nose and on my upper arms, until I rethought and stopped.
      • About the 7th or 8th year this has returned with a mass of rash on the body and in the places that did the scratching with the slightly itchy skin. These were in the exact same spots, but my life wasn’t tremendously worsened, because I avoided ripping my skin and digging for the itchies earlier.
        • I still feel little bug feet crawling on my body, but there’s nothing there so I rub the area &/OR leave it and they stop.
  8. The 2nd year of the Disease has 1 outrageously loud and angry yelling episode, this only happens once.
    • But the sneezing does not begin until after the singular yelling episode.
      • The sneezing gets harder as time progresses the deeper and more painful the more time the sneezes continue for.
    • The frequency of the sneezing increases, so that with some of us, it’s like we’re in a smoky room with no ventilation.
      • Sneeze sets that repeat frequently AND
      • are infectious to anyone breathing in any of our sneeze smear.
  9. My hands, fingernails & toe nails have altered
    • from how smooth they used to be, to being wrinkled rougher on top in a finger length type of wrinkle that runs down the nail from the cuticle to the tip of the finger nails.
    • My hands have aged weirdly they look older than my aunt’s who is 11 years older than I am.
    • Additionally there has been cuticle growth on my finger and toe nails that is larger and tougher than normal, sense since youth I’ve shoved my cuticles back I’ve continued to do so. Recently the cuticle stains remain on my fingers, …
    • P1700371- 3 fingers
    • .Recently, in 2018, year 10 for me there has been staining of the cuticle remains. I used a nail brush to scrub it clean tonight.
    • AND my pinky toes are losing the top layer of skin, it turns flaky white and I can scrape it off with my finger nails, I try to avoid it a lot. AND use of foot cream that’s a mix of a hydrating cream, glycerin, and aloe seems to help keep things from getting too tough on my legs.
    • Hangnails that rip down have come and gone, with treatment the superglue works really well.
    • The ripping & cracking fingernails,
      • The ripped nail edges are being treated with a nail file, because one is carried with me all of the time, my left hand nails are rip cracking the opposite of my right hand on the exact same fingers.
      • BUT my nails are acting super dry like my hair is, so having them break at the tips seems quite normal for how dry I’ve been.
    • b. ripping finger nails
    • Flat topped thumb nails and the one on my left hand has seemed to start cracking on my right hand the small ditch on my flat topped thumbnail seems to be getting worse here are some pictures from my thumbs today.
    • b. flat topped thumbnails w-possible cracks
    • Hangnails also result– So use of super glue to seal those areas is best, generally that washes off in 6 to 12 hours, but the healed area may need re-treatment OR it may not.
  10. Dry Skin this has impacted many aspects of my body, that I feel more than others really see.
    • Hands wrinkled & dry– shared above.
    • Skin sloughing off my body with baths and showers.
      • Getting dandruff when I’ve never had it in my life.
        • Reduce this with super moisturizing shampoo & conditioner AND making sure to keep drinking; drinking; drinking.
        • It’s the worst right after the shower after my hair dries, without using a hair dryer, my head feels like I have a lot scraping to do to let my skin breathe and there’s a lot of flaking.
      • Baths & showers leave teaspoon measures of white skin in the catch cage before the shower drain.
        • I’ve always lost hair, but now the skin mixed with the hair makes the hair paste in the drain.
      • Vagina full of loose skin that feels & appears like a paste, AND it is super itchy because it’s moist and stopping air flow to the skin.
        • I use a douche, which I’ve modified from the original by adding a hole at the tip of the inserter. My mix, which works requires dual uses one right after the other to reduce leave behinds.
          • Adding a 1/ 2 with a water & Aloe Vera juice mixed at a ratio of 2/3 water to 1/3 Aloe juice. Doing the math for the individual amounts with the full mixture as a base means:
            • Water- 0.5 (as 1/ 2) ÷ (0.666) or 2/3rds= 0.333
            • Aloe Vera juice- 0.5 (as 1/ 2) ÷ (0.333) or 1/3rd= 0.1.667
          • With the cleansing agent of 1/2 of cider vinegar.
  11. The 3rd year began occasions where the body sweats like you’re swimming in water, for hours on end,
      • for one 24 hour period to a week I was so sweaty a dry cotton wash cloth sitting on my bare leg absorbed more than a squeezable amount of water.
      • There were multiple times since 2013 when I awoke with the bed soaked from my sweat, the mattress soaked so much that it was still damp the next day. AND
      • it happened just a couple of days ago, ‘death sweats’ I named them, because my lungs are so bad now I can barely breathe in the tub OR in trying to sleep.
  12. Thirst dramatically increases in the 6th year and the thirst continues to increase so that about a gallon or more is drank each day, but the water adds to the body weight without draining away properly, this article continues plus [PLEASE READ MY CHART WITH DETAILS, AT WHOOPS DISEASE 2b. Water Weight Chart Comparisons


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