Me & my speech.

Posts tagged ‘dry’

WHOOPS DISEASE- 7b4. Problems with Diabetes & JULY Details

Problems with Diabetes during WHOOPS DISEASE include abnormal sugar results and body actions that impact uses of insulin and diet actions. Rhapsodie has shared notes on previous pages, some which emphasize diabetes aspects beginning with the first page focused on diabetes with Whoops Disease, more is being shared on this page with details of July and the odd results of things with Rhapsodie’s sugars.

With the July details as yet incomplete, I’m only adding the information because I’m sure some individuals are trying to prepare for the future with ideas being presented in Rhapsodie’s Whoops pages being of some guidance. Since these are the focus on diabetes details, I’m sure some of you aren’t needing this information, but if you are it’s here for you to use in your personal uses.

Because this information in the italicized sections below was shared in the previous May & June pages you may not need to review anything in italics, but it’s added in case you didn’t get the information from reviewing the previous pages. AND if you have read that information the italics should help you be able to skim past the repetition of information without missing where to start the new information of these pages. Like with the previous month I have used grades in colors, but this time the information is in pinks not oranges like it was in May.

Here’s some charted information showing how Rhapsodie’s odd insulin basal patterns were lived since  the beginning of July 2019

In the coloring added to these charts the best way to do that, was to put the information on the chart then color it, if I was to run to my computer to add the new numbers without giving time to make sure I’d set the basal accurately I could have colored it up OR down, BUT later would have had to reread and fix the document for what worked.

Understanding the Chart Images Information

Since Rhapsodie made these Excel pages, which she calls Accurate 2019 sugar results, she knows what the meanings are without these definitions, but because you aren’t familiar with the pages she is adding information for your reference in referring to the chart images being shared after. The May into July of 2019 pattern was observed in conjunction with her menstrual cycle and how the pattern is timed at least from the last cycle, BUT males may have the same patterning with no menstruation hassles OR not when it comes to WHOOPS DISEASE  because things are weird.

The up & down basal pattern colors
  • The numbers with the chart basals on the charts there are 2 different basal number types the full hours & the half of the hour averages.
  • The Minimed 670G pump has use options, I’ve chosen to set my insulin with the 100ths showing, this means that I can set more incremental amounts of insulin for better sugar control. With the graph I’m sharing the 100ths (1.00), BUT at times I also share 1,000ths (1.000), so that the hour split by the basals in half are both added to the chart. This means that
    • in this segment of record there are only 2 different basals, but the one hour until the half (30) of the hour was at 1.55 then at the (30) changed to 1.60.

      • Then those numbers are averaged together, so
        • 55 + 1.60 ends up averaging at 1.575
          • Longhand
            • 55 + 1.60= 3.15
            • 15 / 2= 1.575
          • Double Check
            • 575 + 1.575= 3.15
          • BUT at times the averaging is hidden because the numbers going together end up with a 100th proportion not a thousandth. So 1.60 + 1.50 in average equals 1.55.
        • Because of this there the chart shouldn’t be used to ‘know the basal rates’ on the insulin pump.
          • It’s a partial guide, doctors need to scan information of the rows to understand the patterns better.
          • It can be good to get an accurate basal pattern list
            • Minimed’s Carelink reports include the basal patterns with what’s on the pump in the report making.
            • The spreadsheet chart would need additional columns of time added to do the half hours with the chart for more accurate basal changes.
  • The up & down basal pattern colors in this chart are based on the options in Excel, I didn’t change the pattern coloring behind because that’s information corresponding times of day & life, so the colors with the basals are not as distinct for anyone looking at these pages in black & white. For those of you who don’t take insulin, the basal rates are the amount needed to keep alive without any food insulin being taken.
  • May Chart Color Definitions

June Chart Color Definitions with mention of the July changes

There is more in this section because I saw more layering when looking at this last month of information with the basals. Like with the previous month I have used grades in colors, but this time the information is in pinks not oranges like it was in June. And because I’m too tired I’m not going to remake the July chart like I did with the June chart, but the July chart is similar in grading information, it’s just that that the shades are pink not orangish beige like those in the June chart information segment.

As time goes on with the changes these colors can shift into the new patterns also, BUT it can not be a reference to the previous information with the same colors. Ideas are to shift the shading color spectrum to make this more differentiable, but it’s not yet complete…

The date & day rows
  • The date & day rows contain my sugar test results with the sugar checker numbers added, but
    • every hour where 2 or more tests were done has been averaged, unless an extreme causes me to use another hour OR to list 2 numbers.
  • The date & days, shown on this chart like this with date & day  as shown which are defining the information in the rows. For your information with Excel
    • the ROWS are horizontal, so going with the information acrossed the page &
    • the COLUMNS go up & down so are vertically defined with column information above & below the shared information.
TIMES of day shown in columns & a time row
  • In this chart are organized with military time from 0 through 23:59:59, so the time row, in grey, shows the times starting with 0 and going to 23, each of those is an hour of time.
  • The columns are colored to work with the AM & PM designations and times of day,
    • So 0 to 11:59:59 is the AM column, in lighter shade on the left. This is from 12 midnight to 11:59:59, before noon.
    • 12 to 23:59:59 is the PM greenish column to the right of the chart, this defines the times from 12 noon until 11:59:59, before midnight.
The sugar result rows are from the sugar checker results ONLY

The coloring with this chart are similar to the high & low colors that Minimed charts, BUT I love seeing the greens because that’s my sugar being right.

The Horizontal RedLines

The horizontal red lines, as you can see with the chart, were placed as indications of when Rhapsodie had the 670G Minimed Insulin Pump sensor turned on.

  • For Rhapsodie with WHOOPS DISEASE the sensor isn’t a reliable source for sugar results.
    • It beeps with disconnects, like when she places her arm over it, like to hold something, or she lays on it, or she sets it under a boob then leans forward the pump loses the ‘sensor’ signal. This means turning it off while sleeping allows sleep without ‘bad beeps’.
      • This water interference is not normal for diabetics without WHOOPS DISEASE, unless they are swimmers OR in the bath for extended time frames.
        • The water interference’s have messed with my sugar in other ways. A Minimed technologist, as mentioned above told Rhapsodie, “I am not a doctor, but these numbers show me that your body is responding a lot faster than this pump is programmed to work with the auto-mode in action.” Also this is part of the reason for the problems with the sensor uses.

July Sugar Results by Rhapsodie Information Start

July begins similar to how June began, based from the lows that faded off after the late June menstrual cycle ended. Like was mentioned previously, diabetic males may have cycles of changes in odd time patterns that could correspond with female patterns cycled with menstrual periods. Like the May patterns & early June patterns with sugar spikes at times, this has happened with July also.

But these are more dramatic because the high ends with food calories being eaten, insulin doesn’t lower the sugar for 6 hours initially, but if you eat a meal and take normal carb insulin your sugar drops. Then it changes to 4 hours, so I believe it will go into smaller patterns also, somewhat similar to the patterns of June, then into the patterns of may. So I think you may be able to take protein, which doesn’t work with milk, but like beef jerky or chicken and have that work in reducing sugars without hassling eating a whole meal if you don’t need to. I had chicken nuggets and my sugar dropped to normal level with almost no insulin used. I had stew and it went into normal, but because I took insulin to lower the high the sugars went low also.

July Sugar Results

My basal patterns for the month of July are up and down with sets of days, so far there is no pattern for the month really, but we’re only in the early part of the month right now, the future will show more if the records are continued accurately for others to know things from. BUT what I’ve found so far is that things are going up again. The insulin results shift up & down also, by insulin uses. It’s hoped with time and records we can get better information.

Please forgive me though, I’m only doing records about once every 7 days, which means use of the 1 through 5 patterns in basals doesn’t let me have records done daily without doing the charts every 5 days or less. This is something I do at times, but not always.

Rhapsodie’s records of June 29-30 PLUS July 1st through 4th

With the beginning of July I’m noting that the records are showing basal patterns that are going up again with the spike shifts that are graduating by times that are varying. This was found with the month of June also, so I’m not sure if the pattern will be similar or not for July.

These results are not shifting in a time pattern as far as I can discern presently, there are patterns of ups then downs that seem to be waving in sets of days.

July 5th through 7th

As you can see with the basal rates from July 1st through 7th the levels seem to be rising again.

  • July 1st basal rates 26.40 units per day
  • July 7th basal rates 31.80 units per day

This amount of insulin has gone up over 4 units per day in the last 7 days. With the amount of 8 units to reach the levels of May it can mean the insulin system is only in another flex pattern that will continue over time. The future days should tell this as long as no other treatment is give…

We’ll see with time.

Other Connecting Posts

Diabetic’s and Treatments

Whoops Disease Info

Additional Connecting Information

Rhapsodie has written about these issues for multiple reasons:

1) To have a shared written record, that’s useful. 2) To provide info to others to assist them in planning to deal with the horrid medical system of the U.S. 3) To hopefully impact doctors & health carers to do more work than just using reports which may be false.

Pain ASSessment Inaccuracies & Health Issues

Rhapsodie’s Visual PAIN Diary- From September 2013 into April 2017

 Rhapsodie’s ideas to improve Medical ASSESSMENTS by doctors

PAIN Variables

WHOOPS DISEASE- 7b3. Problems with Diabetes & JUNE Details

Problems with Diabetes during WHOOPS DISEASE include abnormal sugar results and body actions that impact uses of insulin and diet actions. Rhapsodie has shared notes on previous pages, some which emphasize diabetes aspects beginning with the first page focused on diabetes with Whoops Disease, more is being shared on this page with details of JUNE and the odd results of things with Rhapsodie’s sugars.

Rhapsodie is adding more notes on how to understand the information that’s being shared and how she interpreted that information in regards to Whoops Disease. Plus because of the sugar records coming from her Excel workbook, she has added a copy of the chart understanding information for your reference. But unlike the previous page of info, she’s italicized the copied information, so if you know it you can skim over it to the details without trying to find those with more difficulty.

Here’s some charted information showing how Rhapsodie’s odd insulin basal patterns were lived since  May of 2019

In the coloring added to these charts the best way to do that, was to put the information on the chart then color it, if I was to run to my computer to add the new numbers without giving time to make sure I’d set the basal accurately I could have colored it up OR down, BUT later would have had to reread and fix the document for what worked.

Understanding the Chart Images Information

Since Rhapsodie made these Excel pages, which she calls Accurate 2019 sugar results, she knows what the meanings are without these definitions, but because you aren’t familiar with the pages she is adding information for your reference in referring to the chart images being shared after. The May into June of 2019 pattern was observed in conjunction with her menstrual cycle and how the pattern is timed at least from the last cycle, BUT males may have the same patterning with no menstruation hassles OR not when it comes to WHOOPS DISEASE  because things are weird.

The up & down basal pattern colors
  • The numbers with the chart basals on the charts there are 2 different basal number types the full hours & the half of the hour averages.
  • The Minimed 670G pump has use options, I’ve chosen to set my insulin with the 100ths showing, this means that I can set more incremental amounts of insulin for better sugar control. With the graph I’m sharing the 100ths (1.00), BUT at times I also share 1,000ths (1.000), so that the hour split by the basals in half are both added to the chart. This means that
    • in this segment of record there are only 2 different basals, but the one hour until the half (30) of the hour was at 1.55 then at the (30) changed to 1.60.

      • Then those numbers are averaged together, so
        • 55 + 1.60 ends up averaging at 1.575
          • Longhand
            • 55 + 1.60= 3.15
            • 15 / 2= 1.575
          • Double Check
            • 575 + 1.575= 3.15
          • BUT at times the averaging is hidden because the numbers going together end up with a 100th proportion not a thousandth. So 1.60 + 1.50 in average equals 1.55.
        • Because of this there the chart shouldn’t be used to ‘know the basal rates’ on the insulin pump.
          • It’s a partial guide, doctors need to scan information of the rows to understand the patterns better.
          • It can be good to get an accurate basal pattern list
            • Minimed’s Carelink reports include the basal patterns with what’s on the pump in the report making.
            • The spreadsheet chart would need additional columns of time added to do the half hours with the chart for more accurate basal changes.
  • The up & down basal pattern colors in this chart are based on the options in Excel, I didn’t change the pattern coloring behind because that’s information corresponding times of day & life, so the colors with the basals are not as distinct for anyone looking at these pages in black & white. For those of you who don’t take insulin, the basal rates are the amount needed to keep alive without any food insulin being taken.
  • May Chart Color Definitions

June Chart Color Definitions

There is more in this section because I saw more layering when looking at this last month of information with the basals.

As time goes on with the changes these colors can shift into the new patterns also, BUT it can not be a reference to the previous information with the same colors. Ideas are to shift the shading color spectrum to make this more differentiable, but it’s not yet complete…

The date & day rows
  • The date & day rows contain my sugar test results with the sugar checker numbers added, but
    • every hour where 2 or more tests were done has been averaged, unless an extreme causes me to use another hour OR to list 2 numbers.
  • The date & days, shown on this chart like this with date & day  as shown which are defining the information in the rows. For your information with Excel
    • the ROWS are horizontal, so going with the information acrossed the page &
    • the COLUMNS go up & down so are vertically defined with column information above & below the shared information.
TIMES of day shown in columns & a time row
  • In this chart are organized with military time from 0 through 23:59:59, so the time row, in grey, shows the times starting with 0 and going to 23, each of those is an hour of time.
  • The columns are colored to work with the AM & PM designations and times of day,
    • So 0 to 11:59:59 is the AM column, in lighter shade on the left. This is from 12 midnight to 11:59:59, before noon.
    • 12 to 23:59:59 is the PM greenish column to the right of the chart, this defines the times from 12 noon until 11:59:59, before midnight.
The sugar result rows are from the sugar checker results ONLY

The coloring with this chart are similar to the high & low colors that Minimed charts, BUT I love seeing the greens because that’s my sugar being right.

The Horizontal RedLines

The horizontal red lines, as you can see with the chart, were placed as indications of when Rhapsodie had the 670G Minimed Insulin Pump sensor turned on.

  • For Rhapsodie with WHOOPS DISEASE the sensor isn’t a reliable source for sugar results.
    • It beeps with disconnects, like when she places her arm over it, like to hold something, or she lays on it, or she sets it under a boob then leans forward the pump loses the ‘sensor’ signal. This means turning it off while sleeping allows sleep without ‘bad beeps’.
      • This water interference is not normal for diabetics without WHOOPS DISEASE, unless they are swimmers OR in the bath for extended time frames.
        • The water interference’s have messed with my sugar in other ways. A Minimed technologist, as mentioned above told Rhapsodie, “I am not a doctor, but these numbers show me that your body is responding a lot faster than this pump is programmed to work with the auto-mode in action.” Also this is part of the reason for the problems with the sensor uses.

Some patterns of Rhapsodie’s Insulin Changes with June 2019 Charted

The spreadsheet workbook Rhapsodie formed is a tool she’s used to keep track of the super frequent insulin changes and how these relate with her sugar levels, she is able to add the Blood Glucose (BG) meter results that the insulin pump charts don’t show. BUT it takes hours each day to add the numbers and interpret the information beyond normal patterns & cycles. The patterns are shifting so often that my chart records aren’t fully accurate, they are based on records I do have and what I remember with times also.

While the spreadsheet can help doctors, for Rhapsodie, she also needs to be watching the insulin pump basal change patterns trying to find consistency for planning future insulin rates. Presently the chart is generally a follow up used to double check her previous patterns, BUT it could help others to set up their patterns if they are aware of things before they get hit with them.

Rhapsodie’s results show odd shifts as you can see from the images. For the basal shifts / changes going back a half an hour is done to make sure that the basal change impacts the body correctly. The insulin change values as results can’t really be observed until the follow day unless additional variations were made before those times because of the previous shifting being information leading to those shifts. With the Minimed 670G the chart that’s available with use of the sensor gives a pattern line that allows the records of when to change better to follow and use.

When the sensor is turned off the sugar tests are the only results of use for the change possibilities. The insulin pump results are not accurate enough for me to trust them alone, that’s why I’ve started appreciating the sensor even though it’s not liked much. So when I’m using the sensor I’ve had to multiply my sugar checking about 3 times more than normal. Part of that could be because of WHOOPS DISEASE changes that are abnormal also such as so much water under the skin which causes the sensor results to be way out of wack. Plus the body with WHOOPS DISEASE holding ‘real sugars’ near the organs instead of on the watery layers filling the body.

June 2019- 01 through 2 Rhapsodie’s Up & Down insulin Pattern- with her post Menstrual cycle oddities

As mentioned previously once my period ends I get a whole 24 hour period that is a tenth of a unit drop from the norms in the basal. For the last years with WHOOPS DISEASE this has grown into 36 hours of time. BUT NOT THIS CYCLE! That these numbers partially keep the high rates shown from May 31st previously, but I’ve had to shift the color patterns because there are still ups & downs in basals.

For days after the end of my period my basals stayed at the highest level, it never reduced through my whole cycle and it stayed high afterwards. Plus there are the odd up & down sugar spikes that don’t happen at a time that makes them normal. Odd spikes for me have happened with

  • No extra activity;
  • Basal Pattern as normal as possible,
  • No bolus insulin changes, and with
  • No new food being tested.

These are happening at odd times, and when seen on the charts they are showing a pattern that’s connected to the pattern of basal weirdness, but being different. With the chart I’ve added a fourth color, white for basal drops that are more than 0.05 in the hour. Additionally I’ve tried to add in the odd ups when there should have been a running pattern of the same values. The patterns are shifting so often that my chart records aren’t fully accurate, they are based on records I do have and what I remember with times also.

June 2019- 3 through 5 having Rhapsodie’s Up & Down insulin Pattern- with her post Menstrual cycle oddities

Please be aware that the basal records from June 4th through June 10th are based on the Minimed Carelink report records of basals as recorded on June 12th. The patterns graduated from my menstrual cycle to what they are at present, so it’s not accurate with days of uses. I remember having a workday schedule saved with the highest of basals, but there were some variations versus the computer reports. The Minimed Carelink reports do not date the use of those basal patterns and with the changes so frequently the records which are not captured daily aren’t exactly correct.

Taking the time with the patterns of basals, to go up and down by amounts from 1 to 5 and beyond, like with workday has meant that the highest basal was at the top of my record and the lowest used got down to 1 for some hours. Those are the records added to this information of the graphing, but it’s not fully accurate, because as the basal needs get shifted through the day the records vary also. If no daily report is made then there is no accurate time and change record either.

June 2019- 6th through 9th with Rhapsodie’s Up & Down insulin Pattern- with away from Menstrual cycle oddities

As mentioned above the basal records from June 4th through June 10th are based on the Minimed Carelink report records of basals as recorded on June 12th. The patterns graduated from my menstrual cycle to what they are at present, so it’s not accurate with days of uses. Those are the records added to this information of the graphing, but it’s not fully accurate, because as the basal needs get shifted through the day the records vary also. If no daily report is made then there is no accurate time and change record either.

You can see on the charts how I’ve tried to minimize low sugars with lower basals and how I’ve tried to reduce highs by raising basals, but that’s only temporary with the present WHOOPS DISEASE hassles.

June 2019- 10 through 13th  with Rhapsodie’s Up & Down insulin Pattern- with away from Menstrual cycle oddities

While Rhapsodie’s menstrual cycle ended over 10 days before the normal pattern & the previous insulin patterns are not being duplicated like in normal. The menstrual pattern comparisons, which are acquired, and are to be done later should show this to anyone.

June 13th is the beginning of Rhapsodie’s peak ovulation day the lowest of sugar levels are being seen with this menstrual cycle. BUT this is abnormal, because as we mentioned previously, Rhapsodie normally has her insulin go up for a day by a tenth of a unit of insulin thus normally it goes up by 0.10.

June 2019- 14 through  16 with Rhapsodie’s Up & Down insulin Pattern

June 13 to 14th is the day of the lowest patterning in Rhapsodie’s cycle AND it’s also by menstrual cycle time the best ovulation day for her. BUT with this cycle June 16th was the highest day in the whole pattern.

As you can see with the basals on the 14th the first part of the day didn’t have her insulin low enough, BUT the 15th with basals going up is required because sugar results are higher with basals the same. This is the same with the next day also, so this demonstrates that basals are going up again.

June 2019- 17 through  23 with Rhapsodie’s Up & Down insulin Pattern- ODD sugar drops

As mentioned above, this new menstrual cycle pattern with WHOOPS sugar change possibilities. For other people with diabetes AND WHOOPS DISEASE this may be a pattern that impacts them eventually also. With the last cycle sugars kept going up, so basals kept being raised. This last cycle beginning 2 days before the period bleeding started was at a high peak, it went down over 10 basal units in 7 days through the menstrual cycle into the last day, the 23rd. The time of change impacts were 6am AND 6pm. BUT today, 6-24-2019 everything has slightly leveled, for 6 hours, then returned to dropping again.

Like with the images above the June Chart Color Definitions section above describes the coloring, for June, variations in basal rates of insulin from the previous day. The numbers in the images display the veracity of that action by Rhapsodie.

June 2019- 24 through  30 with Rhapsodie’s Up & Down insulin Pattern- ODD sugar drops

The June sugar patterns started going up with some back and forth spiking and falling patterns. Which began with longer frames of time, but got graduated in times for a cycle of 2 to 5 days, then shifted in times with highs.

Beginning to End of June Shifts

As you can see with the end of June versus the beginning of the month there are patterns of basal changes that aren’t normal. For those of you who don’t take insulin, the basal rates are the amount needed to keep alive without any food insulin being taken. The changes were over 10 units, which I told my family about, the pattern changes on the records above show some of the maximums and minimums, the greatest changes were between the days of

  • June 21 with 25.21 in basal units per day AND
  • June 01 with 38.925 units in basal insulin per day

that was a change of over 13 units in basal during the month. Here are the records of the first of the month and the last of the month:

Early in June

and here are the records from the end of June:

June 29th & 30th Records

With this month the basal changes were much greater than they were in the month of May, but for June the base insulin amounts for the day were going down, not up.

  • June 01 with 38.925 units in basal insulin per day
  • June 30 with 25.98 units of base insulin per day.

For the month of June from beginning to end this was a change of about 13 units per day, with the insulin going down. Since the insulin levels in May went up about 5 units per day, there was a decrease of over 8 units in total since the beginning of May. The changes of insulin have continued into July with more food variations in changes impacting situations.

While I’ve not lived through July yet, some records have been started on the incomplete July pages shared under the WHOOPS DISEASE- 7b4. Problems with Diabetes & JULY Details page.

Other Connecting Posts

Diabetic’s and Treatments

Whoops Disease Info

Additional Connecting Information

Rhapsodie has written about these issues for multiple reasons:

1) To have a shared written record, that’s useful. 2) To provide info to others to assist them in planning to deal with the horrid medical system of the U.S. 3) To hopefully impact doctors & health carers to do more work than just using reports which may be false.

Pain ASSessment Inaccuracies & Health Issues

Rhapsodie’s Visual PAIN Diary- From September 2013 into April 2017

 Rhapsodie’s ideas to improve Medical ASSESSMENTS by doctors

PAIN Variables

WHOOPS DISEASE- 7b2. Problems with Diabetes & MAY Details

Problems with Diabetes during WHOOPS DISEASE include abnormal sugar results and body actions that impact uses of insulin and diet actions. Because Rhapsodie only noted the information on the previous pages, some which emphasize diabetes aspects with Whoops Disease, more is being shared on this page with details of Rhapsodie’s sugars. Additionally Rhapsodie is adding notes on how to understand the information that’s being shared and how she interpreted that information in regards to Whoops Disease.

Here’s some charted information showing how Rhapsodie’s odd insulin basal patterns were lived since  May of 2019

In the coloring added to these charts the best way to do that, was to put the information on the chart then color it, if I was to run to my computer to add the new numbers without giving time to make sure I’d set the basal accurately I could have colored it up OR down, BUT later would have had to reread and fix the document for what worked.

Understanding the Chart Images Information

Since Rhapsodie made these Excel pages, which she calls Accurate 2019 sugar results, she knows what the meanings are without these definitions, but because you aren’t familiar with the pages she is adding information for your reference in referring to the chart images being shared after. The May into June of 2019 pattern was observed in conjunction with her menstrual cycle and how the pattern is timed at least from the last cycle, BUT males may have the same patterning with no menstruation hassles OR not when it comes to WHOOPS DISEASE  because things are weird.

The up & down basal pattern colors
  • The numbers with the chart basals on the charts there are 2 different basal number types the full hours & the half of the hour averages.
  • The Minimed 670G pump has use options, I’ve chosen to set my insulin with the 100ths showing, this means that I can set more incremental amounts of insulin for better sugar control. With the graph I’m sharing the 100ths (1.00), BUT at times I also share 1,000ths (1.000), so that the hour split by the basals in half are both added to the chart. This means that
    • in this segment of record there are only 2 different basals, but the one hour until the half (30) of the hour was at 1.55 then at the (30) changed to 1.60.

      • Then those numbers are averaged together, so
        • 55 + 1.60 ends up averaging at 1.575
          • Longhand
            • 55 + 1.60= 3.15
            • 15 / 2= 1.575
          • Double Check
            • 575 + 1.575= 3.15
          • BUT at times the averaging is hidden because the numbers going together end up with a 100th proportion not a thousandth. So 1.60 + 1.50 in average equals 1.55.
        • Because of this there the chart shouldn’t be used to ‘know the basal rates’ on the insulin pump.
          • It’s a partial guide, doctors need to scan information of the rows to understand the patterns better.
          • It can be good to get an accurate basal pattern list
            • Minimed’s Carelink reports include the basal patterns with what’s on the pump in the report making.
            • The spreadsheet chart would need additional columns of time added to do the half hours with the chart for more accurate basal changes.
  • The up & down basal pattern colors in this chart are based on the options in Excel, I didn’t change the pattern coloring behind because that’s information corresponding times of day & life, so the colors with the basals are not as distinct for anyone looking at these pages in black & white. For those of you who don’t take insulin, the basal rates are the amount needed to keep alive without any food insulin being taken.
  • May Chart Color Definitions

June Chart Color Definitions

There is more in this section because I saw more layering when looking at this last month of information with the basals.

As time goes on with the changes these colors can shift into the new patterns also, BUT it can not be a reference to the previous information with the same colors. Ideas are to shift the shading color spectrum to make this more differentiable, but it’s not yet complete…

The date & day rows
  • The date & day rows contain my sugar test results with the sugar checker numbers added, but
    • every hour where 2 or more tests were done has been averaged, unless an extreme causes me to use another hour OR to list 2 numbers.
  • The date & days, shown on this chart like this with date & day  as shown which are defining the information in the rows. For your information with Excel
    • the ROWS are horizontal, so going with the information acrossed the page &
    • the COLUMNS go up & down so are vertically defined with column information above & below the shared information.
TIMES of day shown in columns & a time row
  • In this chart are organized with military time from 0 through 23:59:59, so the time row, in grey, shows the times starting with 0 and going to 23, each of those is an hour of time.
  • The columns are colored to work with the AM & PM designations and times of day,
    • So 0 to 11:59:59 is the AM column, in lighter shade on the left. This is from 12 midnight to 11:59:59, before noon.
    • 12 to 23:59:59 is the PM greenish column to the right of the chart, this defines the times from 12 noon until 11:59:59, before midnight.
The sugar result rows are from the sugar checker results ONLY

The coloring with this chart are similar to the high & low colors that Minimed charts, BUT I love seeing the greens because that’s my sugar being right.

The Horizontal RedLines

The horizontal red lines, as you can see with the chart, were placed as indications of when Rhapsodie had the 670G Minimed Insulin Pump sensor turned on.

  • For Rhapsodie with WHOOPS DISEASE the sensor isn’t a reliable source for sugar results.
    • It beeps with disconnects, like when she places her arm over it, like to hold something, or she lays on it, or she sets it under a boob then leans forward the pump loses the ‘sensor’ signal. This means turning it off while sleeping allows sleep without ‘bad beeps’.
      • This water interference is not normal for diabetics without WHOOPS DISEASE, unless they are swimmers OR in the bath for extended time frames.
        • The water interference’s have messed with my sugar in other ways. A Minimed technologist, as mentioned above told Rhapsodie, “I am not a doctor, but these numbers show me that your body is responding a lot faster than this pump is programmed to work with the auto-mode in action.” Also this is part of the reason for the problems with the sensor uses.

Some patterns of Rhapsodie’s Insulin Changes Charted

The spreadsheet workbook Rhapsodie formed is a tool she’s used to keep track of the super frequent insulin changes and how these relate with her sugar levels, she is able to add the Blood Glucose (BG) meter results that the insulin pump charts don’t show. BUT it takes hours each day to add the numbers and interpret the information beyond normal patterns & cycles. The patterns are shifting so often that my chart records aren’t fully accurate, they are based on records I do have and what I remember with times also.

While the spreadsheet can help doctors, for Rhapsodie, she also needs to be watching the insulin pump basal change patterns trying to find consistency for planning future insulin rates. Presently the chart is generally a follow up used to double check her previous patterns, BUT it could help others to set up their patterns if they are aware of things before they get hit with them.

Rhapsodie’s results show odd shifts as you can see from the images. For the basal shifts / changes going back a half an hour is done to make sure that the basal change impacts the body correctly. The insulin change values as results can’t really be observed until the follow day unless additional variations were made before those times because of the previous shifting being information leading to those shifts. With the Minimed 670G the chart that’s available with use of the sensor gives a pattern line that allows the records of when to change better to follow and use.

When the sensor is turned off the sugar tests are the only results of use for the change possibilities. The insulin pump results are not accurate enough for me to trust them alone, that’s why I’ve started appreciating the sensor even though it’s not liked much. So when I’m using the sensor I’ve had to multiply my sugar checking about 3 times more than normal. Part of that could be because of WHOOPS DISEASE changes that are abnormal also such as so much water under the skin which causes the sensor results to be way out of wack. Plus the body with WHOOPS DISEASE holding ‘real sugars’ near the organs instead of on the watery layers filling the body.

May 2019-  09  through 12 Rhapsodie’s Insulin Up & Down Pattern

What these results show are some of Rhapsodie’s mistakes with these patterns, but also how the shifting isn’t normal insulin use. With working to learn the patterns then dealing with the hassles from these is a lot of work done without any profit other than good health.  That’s a good reason to work this hard.

I’m sorry that the numbers are almost indistinguishable on these pages, I hope you’ll trust that my pattern coloring shows the information of the patterns good enough if you can’t read the numbers.

May 2019- 13 through 15 Rhapsodie’s Up & Down insulin Pattern

May 2019- 16 through 19 Rhapsodie’s Up & Down insulin Pattern

You can see that there are time variations in pattern records in these rows of information that are not the same as those in the previous 2 sets of patterns.

May 2019- 20 through 23 Rhapsodie’s Up & Down insulin Pattern

You can see that there are more pattern alterations on this chart, it’s not as dramatic as some of the upcoming patterning when menstrual hassles shift patterns even more.

May 2019- 24 through 26 Rhapsodie’s Up & Down insulin Pattern- with some Premenstrual

There are more pattern alterations on this chart; it begins demonstrating the premenstrual insulin & sugar alterations that are faster than normal. Regularly from my normal body cycle during a premenstrual period my insulin use rises a tenth of a unit for hour over 3 to 5 days. BUT you can see from the High levels previously charted basal insulin was raised over a tenth of a unit in only 2 days.

 

May 2019- 27 through 31 Rhapsodie’s Up & Down insulin Pattern- with ‘the’ Menstrual cycle

As was mentioned previously I’m not sure if men have a weird variable pattern also, it could be the creators of the Nanos added a pattern that impacts women as a pattern hitting men also. This chart begins the day my period started flowing with the insulin going up another 5th of unit per hour which is a time and a half of raise. It’s half more than a normal menstrual cycle rise.

BUT things go even weirder because normally with my periods

  • the highest day with my sugar is the first 24 to 36 hours after my period starts. Then
  • the sugar drops by a tenth of a unit, into the normal range, for the next 3 to 4 days until my cycle fully ends. Then
  • I have 24 hours of another tenth of a unit insulin drop.
  • That ends with my insulin returning back up into the normal range. BUT NOT THIS TIME…

This cycle was 5 days of high basals in a row, yeehah, no ups and downs. BUT the patterns come back irregularly after these ups.

Beginning to End of May Shifts

For May there are changes in insulin uses basal wise are for

  • May 9th the amount of basal units at 34.58 per day BUT
  • May 31st with 39.55 units of base insulin per day,

that’s a difference of almost positive 5 units per day which is way different than normal changes which are about a maximum of only 2 units per month up and down with menstrual cycles AND other activity change cycles that are more normal. With activity levels going up more normally with better weather these patterns should be going lower, but they didn’t. Here are those summary sections from:

Early May with Basals first in Spreadsheet Records of Rhapsodie

Late May with Basals of Rhapsodie’s Records

These insulin changes are some of the first Rhapsodie has put into record in Excel, so there aren’t earlier comparisons. As you can see the dramatic changes in insulin aren’t normal, and these patterns of changes as mentioned above were abnormal enough with Whoops Disease, that Rhapsodie started making these records of changes for references and for sharing with you, who may be suffering Whoops Disease and diabetes.

For all of these patterns changes continue into June shared on the next post, called WHOOPS DISEASE- 7b3. Problems with Diabetes & JUNE Details.

Other Connecting Posts

Please beware they are grouped based on a style of topics.

Diabetic’s and Treatments

[Sorry posts still need dividing & completing for better online reading.]

Whoops Disease Info

Additional Connecting Information

Rhapsodie has written about these issues for multiple reasons:

1) To have a shared written record, that’s useful. 2) To provide info to others to assist them in planning to deal with the horrid medical system of the U.S. 3) To hopefully impact doctors & health carers to do more work than just using reports which may be false.

Pain ASSessment Inaccuracies & Health Issues

Rhapsodie’s Visual PAIN Diary- From September 2013 into April 2017

 Rhapsodie’s ideas to improve Medical ASSESSMENTS by doctors

PAIN Variables

 

WHOOPS DISEASE- 7b1. Problems with Diabetes

Many of the issues with diabetes aren’t being discussed here, just how WHOOPS DISEASE really impacts diabetics, people possibilities to get diabetes from WHOOPS DISEASE, and people with WHOOPS DISEASE have greater hassles with their diabetes if they have it. Some aspects of these pages will be shifted into new pages, but not at the moment, sorry for the massive size of this document which still needs fixing for readers.

New Diabetics…

with issues of previous diabetics also.

Some people get diabetes with WHOOPS DISEASE, eventual ‘cure’ treatment for WHOOPS DISEASE should take away the ‘new diabetes’ AND possibly the ‘previous diabetes’ also.  The diabetic issues of Rhapsodie are probable with the new diabetics also, BUT the possibility of returning to normal after WHOOPS DISEASE is ‘cured’ means that the diabetes problems will go away also with those people. This is different for people who have had diabetes.

Previous Diabetics

Rhapsodie has been type 1 diabetic since she was 5, so she reads these symptoms versus her diabetic normality’s.

Sugar & Insulin Use Records

Rhapsodie has, recently, formed a spreadsheet to keep track of the super frequent insulin changes and how these relate with her sugar levels. BUT it takes hours each day to add the numbers and interpret the information beyond normal patterns & cycles. While the spreadsheet can help doctors, for Rhapsodie, she also needs to be watching the Minimed 670G Insulin Pump graph patterns. It’s not the easiest thing in the world and it’s continuous work.

As is mentioned below the coloring added to these charts could be done hourly, but it’s not at present for Rhapsodie the best way to do that. The basal change colors are based on basal (underlying base uses of insulin for life without food as a factor) insulin amount changes. Using the comparisons from the previous days makes it easier to determine how to color versus doing it as the basals are being changed. Other insulin pump systems and sugar checkers could make this easier if the graphs are accurate enough to utilize AND if they are keeping basal rates in record with the other information.

Some insulin pump options & sugar checker options, like the CGM systems which may OR may not be insulin pump integrated, also have graphing which may allow memory systems to keep records of the basal patterns corresponding to living with diabetes also.

CGM Information

You can find information using the search engines you prefer to find

  • CGM’s; OR Continuous Glucose Monitors involve poking into the sking so they aren’t loved OR really even liked by me causing more holes in my body every time they are used.
    • The NO Prick Sugar Checkers, I’ve located in research are really not ‘approved’ by the United States FDA maybe comments can cause them to do more approving. They haven’t approved the 3 I like the most yet, but with checking my sugar up to 23 times a day recently, then poking in the sensor device, then poking in the insulin needles regularly my body is more scarred than not from needle pricks. The ones I like may OR may not be able to be linked to insulin pumps, they may OR may not be able to share that information gotten with computer systems but some of them have that available with NO PRICKING AT ALL! More No Prick Links below!

AND

But here are some links to options I’ve heard about and have observed on occasion.

Some Insulin Pump & CGM Connected Options

Other Pricking CGM options without insulin systems connected

No Prick Glucose Monitors which may work as well with CGM &/OR insulin pumps

  • GlucoTrack– Clips on ear for readings AND may be approved already with the FDA
    • Clips on ear, reads the numbers within one minute, uses a combination of Ultrasonic, Electromagnetic, and Heat capacity. (thermal) for reading the sugars and allows USB connection to cell phone, tablets, computers for charting the information, and will allow numbers to be added manually to the pump. Problem only reads when used, but that’s fine for the use with the sensor & the ear clip may hurt in repeated uses over weeks, months & years of time.
  • CNOGA– BG meter is NOT approved by FDA for blood glucose monitoring. BUT their other machines offer that as an option with the devices, but the programming needs to be loaded for this option to be active-
    • VSM- Vital Signs Monitor
      • VSM intended to suit the customers specific needs and includes 3 versions according to customers’ requirements. The basic VSM measures 3 bio-parameters includes Pulse, Blood pressure and Oxygen saturation (SpO2). Additional parameters such as Blood gases or Hematology parameters can be added to the device [BUT you need to ask, to get those, the U.S. FDA has not approved this for sugar checking.] VSM approved for marketing in more than 37 countries (Certifications: CE, CFDA , Anvisa).Cnoga Medical is the only company in the world approved by the U.S FDA for cuff less monitoring of blood pressure & Pulse
        • Pulse
        • Oxygen saturation (SpO2)
        • Continuous, Non-invasive Cuff-free Blood Pressure
        • [BUT NOT for sugar checking yet!]
    • COG- Combo Glucometer (CoG) [Not U.S. FDA approved, stupid]Place your finger, close the lid and measurement start automatically …within 1 minute.
      • Non-invasive Glucometer
      • No pricking, No pain
      • Personal Device
      • For Adult Diabetics (age>18)
      • Suitable for Type1 and Type2
      • Small and Lightweight – ˜100g
      • Compact and Easy-to-use
      • Unlimited usage life
      • 500 Measurement memory
    • MTX- Matrix Monitor- approved in U.S. but super complicated for simple glucose measures because of the multiples tested at one time
      • Continuous, Non-invasive and Cuff-free Blood Pressure
      • Non-invasive Hemoglobin,
        • Hematocrit, and
        • RBC
      • Non-invasive Blood Gases (Ph, PCO2, PO2, O2&CO2 Content)
      • Non invasive Cardiac Output , Stroke Volume, MAP
      • Less than 60 seconds test
      • Four LED lights shine wavelengths from visual light to infrared light through the fingertip.
      • As the light wave pass through the fingertip, some of it is absorbed and the light signal is changed.
      • Next, a camera sensor detects the changed light signal in real time.
      • Using patented algorithms and a vast amount of data MTX analyze the correlation between the signal and bio parameters
  • Gluco-wise– In development
    • can be used on ear OR with hands using radio waves and totally non-invasive, but still in testing, can allow the numbers to be manually added to the pump. Problem only reads when used, but that’s fine with the sensor for pump in use also.
  • GlucoTrack– Clips on ear for readings AND may be approved already with the FDA
    • Clips on ear, reads the numbers within one minute, uses a combination of Ultrasonic, Electromagnetic, and Heat capacity. (thermal) for reading the sugars and allows USB connection to cell phone, tablets, computers for charting the information, and will allow numbers to be added manually to the pump. Problem only reads when used, but that’s fine for the use with the sensor & the ear clip may hurt in repeated uses over weeks, months & years of time.
  • Diabetesnet.com- Lightouch non-invasive glucose monitoring device
  • More No-Prick Options Info

Rhapsodie’s Insulin Changes & Sugar Hassles with WHOOPS DISEASE

For Rhapsodie’s life with WHOOPS DISEASE and insulin changes having records of Blood Glucose (BG) tests for accurate uses she has built an Excel Spreadsheet chart . For her it’s generally a follow up used to double check her basal & sugar record patterns, BUT it could help others to set up their patterns if they are aware of things before they get hit with them.  A technologist reviewing Rhapsodie’s problems with the ‘auto-mode’ option of the 670G told her, “ I am not a doctor, but these numbers show me that your body is responding a lot faster than this pump is programmed to work with the automode in action.” This has meant my actions NOT using automode have kept me healthier.

Sensor Issues

I’ve been using the Minimed 670g insulin pump now for over a year. The issues I’m having with the pump are due to a bad pump with not using the automode, Insulin deliveries are fine with automode only, the delivery rates vary when manual mode is used. Less delivered early AND late in the reservoir. This means the only way that pump works accurately with insulin delivery is with automode. For individuals with WHOOPS DISEASE this means that system is unable to work properly at all.

The sensors for use with the pump are similar to other systems which means that the issues I’m having with the sensors could be had by others using different systems for sugar measuring that are taking readings from the interstitial fluids, under the skin, layers of water. More info on sensor readings in interstitial fluids of body.

Because of the high moisture content of my body, with WHOOPS DISEASE, being way more than normal, maybe even 20 to 30% higher than normal, the sensor system of the 670g hasn’t been able to keep my sugars accurately since I got the pump. The areas of the sensor application have diminished a lot more the closer to ‘death’ I go. The issues that were allowing uses of the sensor on my upper body only, have now been reduced to approximately 16″ by 1″ total available in 4 areas on my breasts. I’m female though, so males may not have that much space for sensor uses.

With the sensor unable to read accurate interstitial ratings because of the water mass variables with WHOOPS DISEASE it means that automode is unable to work safely OR accurately. The Minimed 670g, sensor readings are supposed to be less than 20% wrong on all uses, with WHOOPS DISEASE I generally have had between 100% to 18% wrong in the most normal use locations, which are not the non-special locations I’ve located, ever since getting the sensor. This means for people, with WHOOPS DISEASE, using other continuous glucose monitoring (CGM) devices like:

are likely to suffer sensor accuracy issues that require blood glucose monitoring to remain healthy as well as blood tests to make sure systems that work like the 670g in automode continue doing the correct insulin work.

For me the sensor inaccuracies wouldn’t kill me, they just cause a lot of issues with getting and keeping my ‘goal’ range accurately. For instance:

  • If the sensor reads the sugar as being low, I’ve had it read me at 55 when my sugar is at 91, in automode, it will stop the insulin because it will not accept the accurate blood test reading. In manual mode it can only put out a warning OR do an alarm, which it will also do in automode, but because the sensor reads the sugar in the interstitial fluids wrong it can cause other issues if a person uses a sensor insulin delivery system.
  • If the sensor reads the sugar as being low, like 168 when the blood test reads the sugar at 229, then the correction insulin supplied is way too little to be accurate. This amount of insulin variance is because the sugar result is 59 WRONG, that’s an amount of 36% wrong which means inaccurate sugar care work in ‘deliveries’ to bring sugar rates back to goals. For me with the present insulin correction rates being 1 unit for 23 of a sugar amount, it means there would be about 2.5 units of insulin not delivered which was needed to correct my rates to the accurate goal range I have.

In addition to the these issues and factors, because my body is so high in fluids and so low in fat, there is a sped up food and processing, which means that my sugars fluctuate faster than normal with uses of insulin AND with food ingestion. This means the setup with the insulin pump for insulin delivery is still accurate, but my body consumes food too fast for the autosystem to keep up with the fast shifts and changes of my sugar rates.

Finger Pricking Hassles

I don’t like other features of automode also, but Minimed does take comments and put them on record, so some of my suggestions have worked, my sugar reports through their systems now include more of my finger prick measures.

  • I’m pricking my fingers about 11 times a day, that’s a big problem with the sugar hassles, because my skin is dryer and scarring is greater.
    • I try to remember to change my fingers regularly, but this sugar checker is a problem for using my lower ears, BUT you might find pricking your lower ear lobes works well with less finger pricking needed. The pain sensors at the lower ear lobes are less than on the fingers. The edges of the ears beneath an earring hole are better locations than higher, because pain sensitivity goes up the higher up the ear, the closer to ear stiffness you get.

Other WHOOPS DISEASE Sugar Oddities & Hassles

I’m sorry everyone, I’ve only been handling the diabetes by Minimed Insulin Pumps for over 20 years. That has meant, with more recent machines, my sugar checker in communicating with the pump have allowed my doctors some records to use. BUT I haven’t taken the time with WHOOPS DISEASE to chart the information too accurately until just recently. And (more…)

WHOOPS DISEASE 7a- Updates on Continuous & New Symptoms & Some Treatment Issues

Everyone should be aware of updates with the disease, I try to add those onto the list for the last years, but it’s somewhat a sort through and find thing. So for the present I’m just adding symptoms here, because it’s the more recent things for me, my family, and maybe for you too. I’m adding another apology because I do not have the clinical name yet, it’s changed so much over the years since I’ve learned about it, so only the ‘professionals’ with the treatment have the clinical name.  BUT Whoops Disease, named by Rhapsodie is easy to remember AND because many of us get it whoopsily it makes sense for us.

Here are the disease updates I’ve suffered, but the diabetes ‘addition’ to other people’s lives is a huge hassle, AND that goes away for normal people with treatment BUT for diabetics certain treatment time periods take away diabetes also.

Additional symptoms

Additional symptoms and bits beyond the emotional ups and downs which have continued for months through my whole family include:

Hand Shakes/Tremors

Assumed as Parkinson’s by Whoops Ignorant People- BUT it’s Not Likely to be Parkinson’s even though some similarity with tremors, for the majority of Whoops people. The shakes aren’t that dramatic OR even noticeable when hands aren’t empty, and they have no impact on holding things, not like with real issues. More about this in the connected post.

Flaking Head

Within 24 hours of washing & conditioning her hair Rhapsodie has large flakes of skin that are on the scalp. Scratching them off reduces the itch, the treatment is unique:

  • Stop itching the easy to touch head areas, go for the middle back of the head, and scratch a bit there then do something else for 3 to 10 minutes.

Joint Popping

This is loud and frequent, having grown from almost nothing, it sounds like dry cracking bones every time a joint pops. It happens with:

  • Elbows;
  • Knees;
  • And back.

No pain is associated with this, just the relief of pressure and noise.

Eyelid blinks

  • This issue arises about 2/3rds of the way through the disease. The blinking is uncontrolled, BUT every individual with WHOOPS DISEASE has it happen in the later stages of the disease. Unlike the nerve responses with Parkinson’s as muscles are relaxing, this happens whenever.

Groin Pimples & Boils

Men & women get these.

  • The issues are for normal pimples in moist enclosed groin areas, BUT a large boil goes near the butt hole and lives there for months before the Problems with Diabetes hassles I’ve recently suffered in the last month in a half. There was nothing during that last cycle.

Watery Ears

The ears in sleeping get to be filled with a whitish ear wax, that seems very watery.

Vocal Issues

  • Vocal issues are an oddball symptom of WHOOPS DISEASE also. This includes:
    • Slurred speech;
    • Super loud long voice mid disease, lost my job;
    • Problems with the vocal system if acid reflux isn’t treated before the vocal system is eaten away;
    • Speaking & Yelling ISSUES, which are most recent, which cause hearers to only hear part of what you are saying. The parts they don’t hear feel like echoing bouncing on your body with what you say.
  • Plus there are times when you think you’ve said something, but you are only thinking it. Men are the ones with this issue, but women could suffer it also.

Burping Hassles

  • Gas gets in the gut and hurts if you don’t let it go. It’s only gas, but drinking water, soda, and anything without protein added will give you gas.

Burping Hassles Treatment Plans & Cares

  • Try to burp is a useful action,
  • Drinking highly carbonated drinks can help also,
  • I’ve found using hydrogen peroxide, like 1/4 to 1/8 of a teaspoon in 1 cup of water is a big gas helper. Try to avoid taking too much so you don’t have other issues than gas.
    • Take care with this if you take too much you’ll be farting as well as burping.
    • The pharmaceutical is way cheaper than the food grade and is more viable if you aren’t getting any additional additives. My container is a mix of stabilized hydrogen peroxide & purified water, it has 3% of hydrogen peroxide meaning I use more than a tinsy bit.\

Diabetes Problems

More notes are added to a new page, WHOOPS DISEASE- 7b. Problems with Diabetes, to reduce the size of this information, BUT to also allow more detailing based on what Rhapsodie has found and heard of with suffering of WHOOPS DISEASE. Sorry I still haven’t paid to open up the email option with WordPress, I’ve also had an account BUT have forgotten that it existed until recently.

Hemorrhoid Issues

  • The hard & soft pooping problems can cause hemorrhoids that are unlikely for you at your age. So there are options to take care of things:

Hemorrhoid Treatment Plans & Cares

For hemorrhoids, you can reduce the suffering and future issues by taking care as things OR even before things happen.  Like use of the a higher fiber content in your diet, and possibly also prunes to keep your shits regular.

Fiber Actions

If you find that you are using any fiber food, make sure it’s enough to be good for you, because “[m]ost Americans don’t eat enough fiber less than 20 grams [a] day[,] instead of a healthier 25 to 30 grams [a] day”. Borushek, A, Calorie Fat & Carbohydrate Counter, 2006, p. 276) A cereal with fiber, like Honey Nut Cheerios is not that high in fiber with only 2 grams per serving, this is versus 1 packet of Quaker Oatmeal with 4 or 5 grams per serving.

Look at the Popular Food Comparison Chart image for more information of SOME fiber food comparisons, and look beyond the starches. A set of great foods generally high in fiber are vegetables, fruits, and others that are starches but are not processed. As a newer Calorie King book shares, but you can also find the information checking the nutrition on vegetables and even fruits for more info that you can find in stores OR online.

  • Spinach fiber, cooked 1/2 cup= 2.2 grams of fiber
  • Broccoli fiber, cooked 1/2 cup= 2.4 grams of fiber

But take care with vegetables and fruits the preparations can shift & vary the fiber amounts AND so can what ‘exact’ types of fruits OR veggies are gotten. Some places have nutrition lists in the vegetable departments, some don’t. The preparations into packages allow the calorie listings to be examined, but if you’re going with gardened foods, you may want to do some other calorie & fiber research based on what is being grown and more.

So even though the generalized listings are okay, don’t just use them alone when you are eating if you’re really trying to be more accurate in helping yourself. Especially if you can pull from the package and use those listings, instead of the generalized list.

Also the exact same supplier may have various amounts of info for the type of products which can vary with production and more. The fiber variables with Goya garbanzo beans is an example, beware the product I have in my cupboard has different listing numbers, so they may have altered the manufacture OR the growth stages of the plant may have shifted contents…Spring, summer, and fall plants are varied in fiber, calorie, carb, and possibly other amounts:

So, if you can always work to make sure your fiber intake is great, probably even better than is good normally. Like having at least 2 or 3 higher fiber servings per day OR at least some fiber with every meal or snack. Doing this so that the poops are less of a problem, like adding additional amounts of the greater fiber foods, like-

Like with fruits and vegetables the processing, the variations, and the brands of the product can shift the fiber values a bit.

Only a few of the found oatmeal options were added here, there are varieties of amounts in packets and prepared serving sizes. There are also variations of preparations from steel cut oatmeal, to quick cooking oats which also have various fiber counts.

    • High Fiber Snacks like
      • Triscuits as daily serving snack OR meal.
      • Granola as daily serving snack OR meal.
      • Wheat crackers,
      • Other
    • High Fiber Brand Cereals like
      • Frosted Mini Wheats as daily serving snack OR meal.
      • Oat Bran Cereal as daily serving snack OR meal.
      • Other

Poop Work Actions

So for healthier and less painful pooping eating healthier is a huge benefit. In addition for pooping more easily:

  • Make sure to use Vaseline on your rear hole every time you shit, this softens your ass and helps you avoid wounding yourself with super hard shits.
  • Also please try to muscle suck it up, so you can rearrange what poop ‘forms’ are coming out.
    • I have had to  use my fingers, to break up the
      • Baseball feeling, larger than golf ball size mass.
      • The multiple golf balls worked out better with finger breakups also.
        • SO make sure to have finger cleaning wipes/ solutions or a SINK ready to treat your hands with these hassles.

With these ass work and poop issues having a cleansing solution immediate is a super big help as well as being a lot more healthy.

Sneezing is super heavy

  • That means using a face mask is not enough, using a handkerchief wrap over the face mask may not be comfortable, but a face pad with the mask can also work asorbitively.

Avoid passing lung fluids

  • Wear a face mask;
  • Do not sneeze or cough on your hands; Use elbow OR shoulder so you don’t spread the stuff.
  • Using bleach and boiling water should kill the ‘bugs’ ALSO dry heat will kill them, so a normal wash is fine with a hot air dryer.
  • Using a burn can in an oven with fire can destroy any tissues capturing lung mucus & sneeze crap that may hold the infection.

Sound Sensitivity

  • This has begun for me, pitchey noises get louder and more annoying, this is supposed to continue and get worse until it disappears. This can continue for 1 week up to 3 weeks, I’m suffering the early stages now.

Treatment Ideas

  • Outside nature sounds do not have this bothering effect;
  • Voices might OR might not;
  • Music; TV; Computer; and other electronic sounds cause a pitchy noise problem leading to headaches, so preparing by having
    • Ear plugs (normal foam ones);
    • Noise pitch ear plugs;
    • Noise canceling headsets;
    • Noise life plans;
      • Tell family about the situations so they can be prepared to live with you through these situations.
      • Work mates & job people might be able to work with you also, your boss can hopefully have plans to work with you through  these times.

Abnormal Planters Warts (which are what I assume are happening)

  • Plus for people is the planters warts in the feet causing horrid foot pains. These like fill the foot with pain spread through the whole foot.
    • Treatment gets rid of these, if they aren’t the ‘normal’ planters warts infections.
    • Surgery to remove the pains could be an option, but you might not want the option if we determine the clinical ‘name’ of Whoops Disease for correct doctor treatment and care FIRST.  Hah, most of my doctors are treating me for other things like:
      • Diabetes,
      • Asthma (which I do not have so use chamomile tea)
      • Colds (which I treat as on other pages WITHOUT prescriptions)
      • Acid Re-flux (which I treat naturally with unpasteurized cider vinegar & honey before bed.)
    • My natural Whoops Disease, during disease, treatments are listed in the other pages, linked below for any who want to read more.

Blood Pressure Problems

  • There are also blood pressure problems, mostly for males, so the doctors are treating the symptoms resulting from the Whoops Disease problems and their assumptions about a patient’s weight Body Mass type.
    • In my family one of the males, over 60 years of age, also has gotten a blood vessel blockage in his left leg. This MAY OR MAY NOT be totally a WHOOPS issue. If he is treated for WHOOPS DISEASE before going in for surgery it’s possible that tests will prove that this is either caused OR not caused by WHOOPS DISEASE, but if he is pretreated for blood vessel blockage then there is no WHOOPS DISEASE proof to share.

Possible Kidney Issues related with High Potassium levels

  • For women over the age of 60, with Potassium levels being high, kidney problems may be found. Especially if they are treating their acid reflux with those over the counter medications. Which raise levels of Potassium by reducing levels of acid in the body.

Possible Ways to reduce Potassium Problems with the Body

  • Like with the microbes in the intestines, the acids in the body are both healthy & healthy in some forms.
    • So use of
      • the unpasteurized vinegar +
      • local area honey
      • with a cup of hot OR warm water
        • for acid reflux & stomach digestion issues can be good if done right.
      • Doing this right involves-
        • Use of unpasteurized vinegar
        • Having this done before bed OR early in the day followed by teeth cleaning, like within a half an hour, to reduce the acid eat on the teeth,
      • assists the body in remaining healthy while also DOES NOT INCREASE POTASSIUM in the system.

Other Benefits of Unpasteurized Cider Vinegar & Local Honey

As we’ve mentioned in other areas there are benefits with use of the unpasteurized cider vinegar & local area honey.  These two ingredients are not the ‘cheaper’ ingredients of these types to buy, but they are way healthier than the over the counter medicines with the ‘bad side effects’ and more issues as yet undetermined.

Take care to avoid problems with the natural medicines
  • This treatment with unpasteurized cider vinegar & honey still has acid, though definitely not as much as the pasteurized (boiled) vinegar does.
    • So the teeth can suffer a lot, if you don’t take care to fully clean your teeth immediately, at least within a half an hour, after use.
Values of the natural medicines
  • Less stomach issues which have use of over the counter treatments, which unpasteurized cider vinegar & honey provide, like the
    • Acid reflux medications;
    • Tums/ Rolaids
  • Reduced allergy problems that increase over time with the natural uses
    • I, who is not yet 50, used to be allergic to things, so that in the years early with acid reflux, about the age of 30 or so, I needed to start taking allergy medications all the time. NOW I TAKE NONE because of the natural treatments & because of avoiding perfumes & ‘cleansers’ I’m allergic to.
    • I am not allergic to dogs anymore, it took about 1 to 2 years, but the itchy eyes and itchy/ drippy nose went away after using the mixture continuously for that time. I still continue the treatment, so I still have those benefits.

When I was about 3 or 4 I loved the smell of Golden Rod plant, it was buttery sweet, but by the age of 9 or 10 I couldn’t get anything but no smell from it. Returning to the county in the 90’s the plant was a little dense for my sinuses. But in the around 2008 I started the cider vinegar & honey treatments. Last year the Golden Rod smelled buttery sweet again, yeehah!!!

Other Connecting Posts

Please beware they are grouped based on a style of topics.

Diabetic’s and Treatments

[Sorry posts still need dividing & completing for better online reading.]

Whoops Disease Info

Additional Connecting Information

Rhapsodie has written about these issues for multiple reasons:

1) To have a shared written record, that’s useful. 2) To provide info to others to assist them in planning to deal with the horrid medical system of the U.S. 3) To hopefully impact doctors & health carers to do more work than just using reports which may be false.

Pain ASSessment Inaccuracies & Health Issues

Rhapsodie’s Visual PAIN Diary- From September 2013 into April 2017

 Rhapsodie’s ideas to improve Medical ASSESSMENTS by doctors

PAIN Variables

#30- Growing PAIN Problems 

Additional Connecting Information

Rhapsodie has written about these issues for multiple reasons:

1) To have a shared written record, that’s useful. 2) To provide info to others to assist them in planning to deal with the horrid medical system of the U.S. 3) To hopefully impact doctors & health carers to do more work than just using reports which may be false.

Pain ASSessment Inaccuracies & Health Issues

Rhapsodie’s Visual PAIN Diary- From September 2013 into April 2017

 Rhapsodie’s ideas to improve Medical ASSESSMENTS by doctors

PAIN Variables

WHOOPS DISEASE 2b. Water Weight Chart Comparisons

For Rhapsodie her suffering with Whoops Disease has been multiplied by doctors who assume a lot without taking the time to get outside of their own comfort zone in investigating issues Rhapsodie has mentioned. So Rhapsodie spent almost 24 hours gathering information and making a chart, so the doctors could have a scannable reference when she mentions water weight.

The adult human body water intake & output use image, at Quora.com page under Dr. Larson’s name was used to form the chart information with Rhapsodie’s information & variables included. The other details explaining that chart, more, are saved in upcoming additional blog pages, because this page will be big enough. I’m sorry about that, it’s just too much work right now to fix and modify a whole blog sharing when there are followers that keep returning to find out more details before they suffer inaccurately by bad doctoring.

This chart has been created about Rhapsodie and by her, because images as are shown demonstrating Rhapsodie’s altered looks in the in the WHOOPS DISEASE- 2. Females pages, they are not being added her again. BUT the chart images compiled with formatting & coloring for easier connection between multiple pages are being shown, followed by the other present blog post links.

A- Intro to Rhapsodie’s WHOOPS DISEASE Water Weight Chart
b- Comparison of Metabolism water intake & Feces water releases, in Rhapsodie’s WHOOPS DISEASE Water Weight Chart with the information of the first parts of the 2 left columns from Quora.com.

c- Comparison of foods water intake & insensible LOSS water output, in Rhapsodie’s WHOOPS DISEASE Water Weight Chart with the information of the first parts of the 2 left columns from Quora.com.

d- Comparison of beverages ingestion as water intake & sweat water losses, in Rhapsodie’s WHOOPS DISEASE Water Weight Chart with the information of the first parts of the 2 left columns from Quora.com.

e- Comparison of insensible gain water intake & urine fluid output, in Rhapsodie’s WHOOPS DISEASE Water Weight Chart with the information of the first parts of the 2 left columns from Quora.com.

f- Comparison of intake & output TOTALS with a comparison summary in Rhapsodie’s WHOOPS DISEASE Water Weight Chart.

For Rhapsodie the difference between her normal 140 and 193 pounds is 53 pounds that’s a gain in 22 days, but we never calculated

  • menstrual cycle releases, so that is more calculation to consider. Plus
  • sneezes,
  • coughs,
  • bouts of diarrhea,
  • frequent sinus draining, and
  • more.

Being that Rhapsodie has not been eating the calories she did before the disease for many years, and other research supports this, Rhapsodie seems to be starving in the United States looking like a woman from Africa who’s suffering a parasite problem also. With the swollen belly, skinny hands & feet, dark hollows around the eyes, cracking fingernails, dry skin, cracking lips, and more.

End of this Whoops Disease Post, more continues on pages not added yet, but also on other pages. Links are below.

WHOOPS DISEASE-7c3. A Possible Cure for Type 1 Diabetes, BUT Additional Disease Issues

SORRY not done yet…I’ve reordered and added more info from the previous post 7C 1 & 7C2 posts here. This info is still a large amount on a consistent theme, the images in my files are gathered, but the huge folder and file needs to be sized for sharing as well as sorted to determine the 2 to 5 I might add that are pertinently demonstrating the information I talk about below when pertaining to me, like it not being Parkinson’s.

These disease issues, which weren’t previous to diabetes may disappear with treatment of the Whoops, but this is dependent on your care for yourself and your needs. For instance I have had broken bones, so it means that bone care, rheumatoid arthritis from lack of bone care, recovery needs, and other issues based on the injuries and treatments are likely to follow me the rest of my life. The eaten throat, which was normal previous to the disease, is a vocal hassle now and cure is not going to come in this system. I can’t sing nicely anymore, I can barely talk most of the time now, and I’m always having a sore throat. BUT in some cases the treatments by medical people won’t cause more issues, but in other cases especially when they aren’t needed they can add to issues OR cause issues.

Some of these issues & diseases can be figured & diagnosed because of Whoops:

Care is needed in some of these cases because treatments that allow Whoops to get worse could cause additional Whoops healthcare problems and health conditions that cause problems.

Asthma-

  • The trouble with the Whoops is that the microscopic organisms in the lungs make it harder to breathe. The inhalers that open up the lungs allow these organisms more play ground to make it even more difficult to breathe with less chance of breathing easier every single time an inhaler is used.
    • One of my doctors prescribed inhalers for me, because nothing was improving after months on the devices she prescribed another ‘medical’ inhaler. It was burning my throat. A visit to the ER had that doctor taking me off all inhalers accept the albuterol. I have only used that once since, because a visit to a lung specialist with an expensive test on a huge machine resulted in “You have no asthma”. So because of the chamomile tea, ginger, black licorice root at times, and licorice tea helping me, I’ve not even tried to use an inhaler at other times even though my breathing is really hard in the moist spring, summer, and fall air.

Bronchitis/Pneumonia-

  • The lung issues from the organisms also mean that lung infection possibilities are greater, so more care with health is a necessity. These organisms aren’t going to be killed by antibiotics, your healthy bacteria will be killed and you’ll suffer more issues.

Eczema-

  • Dryer skin is almost a guarantee with this disease, the less moisture you consume, the dryer your body is, the less baths you take, the more likely you’ll suffer symptoms more like Eczema.

Acid Reflux-

  • You MAY suffer this even if you never have previously, my mom and I both have this issue now since Whoops.

Diabetes-

  • You MAY suffer this even if you never have previously, there is a need to treat this with the Whoops, BUT it could be immediately OR within a few hours after treatment that the diabetes gained from Whoops goes away.

Sleep Apnea-

  • This seems to be worse for males & it also seems to be horrid for those that don’t take, at least 15 minute, baths once a week.

Narcolepsy-

  • “The signs and symptoms of narcolepsy may worsen for the first few years and then continue for life. They include: 1. Excessive daytime sleepiness. People with narcolepsy fall asleep without warning, anywhere, anytime…” (https://www.mayoclinic.org/diseases-conditions/narcolepsy/symptoms-causes/syc-20375497 ) BUT I’ve found with Whoops though I’m extremely tired so much of the time, I only nod off when I let myself. Like in the bath OR leaning a backrest. My fractures are also reasons for lack of energy.

High Cholesterol-

  • I’ve had my cholesterol up at around 138-142LDL, which is an issue…BUT since I’ve been starving myself, my body is working to protect my organs. I think the cholesterol is likely protecting my organs from being choked to death by the masses of water in the body. AND for Whoops Disease treatment with the electric shock hitting the organs, the bioelectrical impedance with the extra LDL cholesterol fat around the center of my body may actually assist the organs in being more protected against the electrical shock then if those organs were just surrounded by water like my skin layer and rest of the body is.

This also means those body areas are likely to assist in better recovery because of the electrical charge ‘dissipating’ versus spreading with water. The recovery should be a bit faster, because my body isn’t overloaded with electric hitting my core, like it would be if my cholesterol was in normal ranges. Some more about this is added in the blog post about body composition tests.

High Blood Pressure-

  • If you already have high blood pressure that’s likely to be an issue after treatment again if it’s not with the disease. BUT every single individual in my Whoops Diseased family has had an issue with high blood pressure, BUT every single one of us has no issue now. So with Whoops Disease this was only temporary as an issue for all of us.

Hyperthyroid-

  • My mom and I have been diagnosed with thyroid issues. I’ve been getting the pills for over 10 years now, but the white ones of any brand eat my throat, so I always need the pink ones. AND they make me super sleepy all the time. Dosage wise the amounts are really small, less for my mom than for me, and the amounts once reaching 125mg was too much for me, 112mg has been better, but not more has ever been needed. That’s after going almost a year with none, which is abnormal, because doctors say, “amounts go up regularly” and doctors predict, “you’ll need this for the rest of your life.” If this was because of the Whoops it’s unlikely that it will be needed for life and it’s unlikely that the rates will ever go up through the disease.

Shakes that are NOT Parkinson’s Disease

Assumed as Parkinson’s by Whoops Ignorant People- BUT it’s Not Likely to be Parkinson’s even though some similarity with tremors, for the majority of Whoops people. The shakes aren’t that dramatic OR even noticeable when hands aren’t empty, and they have no impact on holding things, not like with real issues.

  • This shaking only happens when nothing is being held or touched by that hand. So writing, drawing, sewing, cleaning, eating, and typing is not bothered by the soft shakes.  For some people they may think you have Parkinson’s Disease because of this shaking- the article 10 Signs of Parkinson’s Disease, from June 12, 2019 with very descriptive images also tells us a list of Parkinson Disease signs which ‘non-Rhapsodie people could assume she has, because they don’t live in her body.”
  • “…The loss of these neurons causes essential neurotransmitter levels to decrease, particularly the production of the neurotransmitter dopamine [it’s likely blood tests can show dopamine levels, but it’s possible that like sugar levels the normal amount needs to be correct for the individual’s height, weight, bone mass, and life style]. This, in turn, leads to abnormal brain activity that affects one’s control of muscle movement. Older individuals are the most common group diagnosed with Parkinson’s.
  • If you’re an individual like me some of your relatives may even assume that your symptoms are other diseases. AND in some cases the options you have for showing that it’s something else like Whoops Disease are really limited, especially when doctors don’t even know about issues and aspects of care for a disease like Whoops which is man made. In addition family & doctors may hear of OR believe that you are suffering diseases, BUT taking the time to research the disease can help you assess the accuracy of what is being diagnosed. AND because you live in your body 24 hours a day ever since you were born, you’re more likely able to better know your body in many aspects than assumers who aren’t you.

Parkinson’s Disease Versus Whoops Disease

My father was concerned that I was suffering Parkinson’s Disease, but my research & the evidence I’ve prepared show that’s not the case. Parkinson’s has some other issues that are, at times, similar to the issues with Whoops Disease, BUT the disease aren’t the same. I’ve listed a set of Parkinson’s symptoms below with my comments and at time images about my issues added.

1. [Resting] Tremors-

[With Parkinsons]…usually, this begins with the trembling or shaking of one finger. Sometimes the hand or foot on one side of the body experiences tremors or, in rare cases, the face or jaw. The tremors usually begin when the affected body part is relaxed, which is why they are called “resting tremors.” Not all tremors are symptomatic of Parkinson’s, however.

[This is why looking at more than one sign is vital for trying to determine any issues being suffered. I’ve had only some slight tremors in my right hand, and also everyone I’ve heard of suffering this disease has this issue after they get into the last third of the disease. Plus recently my trembling has been mostly after being too tired, when I go to bed I start trembling. My hands had ‘the shakes’ for about 6 months, so you may only have issues for a time also.]

2. Muscle Rigidity

“However, those with Parkinson’s experience stiff muscle tone. This means the muscles of an affected body part do not relax completely even at rest…[I am suffering injuries, but my muscles are remaining flexible, can be rubbed, and work without rigidness when not being overworked. They relax fully when I sleep as long as I don’t move and hurt myself awake, in fact I relax so much that my arm goes asleep and numbs, which means I have to awaken it because it feels dead, that’s not a rigid muscle, that’s a blood flow pressure issue.

  • Muscle rigidity can be felt with rubbing and soothing of body parts, it sort of feels like how muscles do after extreme exertion OR how feet sometimes feel after getting out of high heeled shoes. You know how when you feel a hard muscle because it’s been overused OR suffer stiff feet from bad shoes OR moves.]

3. Slowed Movement

With Parkinson’s– “Also known as bradykinesia, slowness of movement [with] Parkinson’s disease … causes people to perform ordinary activities, such as walking, moving, or changing clothes, more slowly than normal…” [Imagine trying to walk or move with air pressure casts on areas of your body. It’s harder to move and thus people perform slower to allow them to complete their actions with moving. AND this is generally for all movements, not just specific types of movements.

  • For me I move slowly because certain lifting of items, moving of items, walking moves, standing moves cause fresh pains to shoot out. Putting spoons back in the silverware drawer one day had me screaming out in pain because of an unexpected shooting pain, 3 days ago changing the bedding caused my left lower leg to shoot out pains at me 3 times because of the movement… which I’ve avoided since. But other actions like cooking take a lot of effort and energy, plus because of limited activity muscles aren’t as supportive as they used to be in protecting my bones from moving issues.

This has grown worse over time because my injuries have remained uncared for, and the only prescribed drug that really reduces my pain is an antibiotic. This means I am cautious because the pain is not good nor do I think the doctors will ever treat the problems because they haven’t as yet.

  • I had a painkiller, a steroid drug; and only took 2 doses of the 7 because of the Penicillin in the drug which I’m allergic to causing rashes & itchiness. That drug relieved me of pain for almost 7 days, and cautiously I did enjoyed activities like walking up to the pond once, cleaning the house, doing dishes, cooking dinner, but after that ‘pain killer’ dissolved out of my system I had 2 months unable to move normally OR do almost anything because of further injuring my body additionally while the drug was in my system…now I take other natural treatments. Other issues with doctors are also blogged about if you’re interested.

4. Change in Posture

https://facty.com/conditions/parkinsons/10-signs-of-parkinsons/4/

Postural instability is common among people with Parkinson’s and usually appears in the LATER stages of the disease…may be unable to maintain balance in general … Turning, pivoting, and standing upright also become difficult.” [This makes sense because with the muscles ‘going rigid’ the other parts of the body working under and around the muscles have less use AND less repair advancement. It’s sort of the like body is atrophying while the individual is not resting on a bed OR dead.

Rhapsodie’s posture is still very good, her movement hindrances are because of the pain from ripping bones AND the rheumatoid arthritis resulting from the lack of bone care over the years. Her balance is still good, but she works really hard in moving to not hurt, so others could think she has posture issues.]

5. Weakened Facial and Throat Muscles

https://facty.com/conditions/parkinsons/10-signs-of-parkinsons/5/

  • “…The face tends to have a fixed, vacant expression called the “Parkinson’s mask.” Loss of facial muscle movement restricts facial expressions, including smiling, frowning, and laughing.
    • [The image on the website reminds me of individual’s I’ve seen with Downs Syndrome.
    • Rhapsodie has no facial problems other than the blinking of her eye, which isn’t happening anymore. She doesn’t smile as often being a companion with the T.V. & her reading/ writing most days without any discussions with other people.]
  • Similarly, weakened throat muscles cause the individual’s speech to become low-toned, unclear, and sometimes slurred.
    • [Rhapsodie’s indistinct speech happens because of limited interaction with other people, which has meant lazy talking styles.
    • Her sore throat is strong, just sore all the time.
      • Muscles in use get sorer than muscles that aren’t being used.
      • Unused muscles get itchy feeling because they need movement to keep the bloodflow to be feeling good. That’s why individuals wearing casts have itchiness, the skin issues are only a part of that factor, then there are the issues with limited blood flow in areas of the muscles that are familiar with those actions.]
    • Choking, coughing, and drooling may develop at advanced stages.
      • [Rhapsodie has had coughing with the sneezing & sleep drooling because of the masses of water in her body. The coughing began early in the disease, the sneezing within the first 2 years; the drooling was a situation of the previous 2 years, with NOTHING of the drooling now. Additionally she knows this is not Parkinson’s because
        • Coughs leave a dried glittery white mass on any darker materials. It’s such a mess that it looks like glittering shimmer makeup but coughed OR sneezed onto nearby stuff.
        • The sneezes cause the same issues; these are the disease remains that die as they dry. BUT look like glitter glaze used on nails and come from the wet releases.
      • Dry lungs really reduce this hassle, the more moist the air is the more coughs & sneezes that are released. The WHOOPS DISEASE nano microorganisms are waterborne, meaning they need water to live and reproduce. Have a super dry house, with less than 20% humidity 3/4ths of the year mean Rhapsodie continues to fight them choking her to death.]

6. Freezing Gait

https://facty.com/conditions/parkinsons/10-signs-of-parkinsons/6/

“…People with Parkinson’s sometimes hesitate to move forward and report feeling as if their feet are glued to the ground…” [This sounds like something with the muscle atrophying is swelling OR causing nerves in those areas to not feel enough to move. It sounds like they are not feeling ‘some’ of their foot areas as much. With individuals laying in beds, they say that they should be turned to keep them from having body parts atrophy, harden, and weaken areas of skin, bones, muscles and more.]

7. Small[er] Handwriting & Other test possibilities for fine motor skills

Images of Rhapsodie’s writing & artwork over time need to be collected as the evidence that she does NOT have Parkinson’s, even though that’s what her family believes could be happening, because the doctors haven’t investigated the ‘reports’ of other doctors by looking at the gathered evidence.

 

If you take your car to the mechanic for an overall check with mention of noises & wiggles of the front end in driving and they change the oil and check the tire air pressure, but then your tie rod collapses, OR your brakes fail to work, OR the noise and the shaking also continues so that you go to other mechanics that read the report of the previous mechanics time and again. So they don’t do the work to fix the struts OR rotors OR brake pads and you eventually end up selling that car you’re unlikely to ever want to return to those mechanics for vehicle service. Plus if they were paid by you for service to your car it’s likely they can also be sued for lack of care that they were supposed to do. That could be multiplied if the mechanics lack of care caused further injury & problems for you and your family.

https://facty.com/conditions/parkinsons/10-signs-of-parkinsons/7/

“An early indicator of Parkinson’s is a change in the size of a person’s handwriting [AND other aspects of hand work and how it is & has been done over time.]  Often, a marked decrease in the letter sizes and spaces between the words becomes noticeable…” [but more can be found if there is a way to learn beyond just using handwriting. Plus there’s a need to make sure to get the ‘past’ in a recordable style that is of use in determining the situation if the ‘patient’ doesn’t tell the doctor and if the doctor doesn’t listen to the patient.]

Some Test Options Including & Beyond Handwriting Alone

Options for testing are added here because Rhapsodie’s handwriting sizes have shifted for many years, so that’s no evidence against Parkinson’s. The fine skill control for doing work, like with the pen, can be tested in other ways also.

  • Change in the Size of Handwriting
    • Handwriting often shifts and changes sizes. Over time people develop a style of writing, like Rhapsodie has based on where she’s writing and how much paper she has available for what she’s trying to write.
    • So I’m assuming because of the muscle atrophy, the amount of muscle, tendon, and skin flexibility with these actions ‘rusts’ which means to write requires smaller, slower, and more controlled writing work efforts.
  • Paper Folding
    • Origami– “…[A]nimals and flowers of Japanese origami…”- If a person has never done this it can be a harder test for them if no directions are shown with the folding, but if there were numbers, letters, colors, or designs and a sheet of directions to create the shapes the folding shouldn’t be a huge hassle. The skill of a new person will not be as fast or as great as a more experienced origami worker, but it could demonstrate issues with muscles in hand uses also.
    • Folding fans– if a person has never done this it is an easily perceived action, and there are generally the simple back and forth fold that drives the style for these fans;
    • Folding paper airplanes– if a person has never done this it is an easily demonstrated activity;
    • Zhezhi. “…Traditional Chinese paper folding concentrates mainly on objects like boats or hats rather than the animals and flowers of Japanese origami…”
    • Paper flowers, could be made easily with a couple sheets of paper with a tack OR a swivel paper snap going through.
  • Button sewing on;
    • if a person has never done this it is an easily taught action;
  • Snowflake Cutting– This skill uses hands and scissors to get done, the folding of the paper, the holding & cutting of the paper, and the opening of the paper snowflake designs are all hand muscle skills.
    • This work doesn’t need a lot of experience to be done, but if the individual trying the work is being tested for Parkinson’s disease it can demonstrate how hand uses are ‘stiff’ and how use of materials & tools is impacted by the hands.
  • Makeup application can be a sign also-
    • Like having the individual with the possible Parkinson’s disease apply nail polish to their self AND also possibly onto others.
    • Other make up application processes can shift depending on the skill levels of the applier and the result desires for the test information.
  • Hair work can also be a good test- this depends on whose hair and the type of hair they have also. The longer hair which needs braiding is going to be more difficult for a person with hand troubles.
  • Seam repair;
    • if a person has never done this it can be a harder test for them;
  • Knitting– individuals hold the knitting needles with both hands, so if a person has never done this it’s not a good test for them;
  • Crocheting– individuals don’t need a crochet hook for a simple loop, but the hook allows them to feed and grab the material with one hand doing the needle work and the other holding the weaving strands generally. The weaving is easier with the hook than the fingers for many strand materials and sizes.
  • Cross Stitch– this is following a pattern on material for weaving in and out,
    • Plastic grid sheets, can allow cross stitch tests using yarn and a blunter yarn needle.
    • Canvas backings, the canvas sizes vary, but the holes are way smaller than with the plastic grid sheets. This work is generally done with embroidery floss or similar threads, which come 6 OR 8 strands combined.
      • The strands need to be separated to be worked so that’s more muscle testing also.
    • Macramé uses larger strands, plant holders are often created using macramé weaving; since the strands are more ropey in texture they are rougher for the hands, but they are easier to grip also.
    • Weaving– I’ve never done real weaving, my only experience is weaving potholders with the device that allows square potholders to be woven with use of weaving.
    • Drawing; unlike coloring in the lines is less defined, so it’s easier for those that are losing skill to rearrange creations to seem normal even when they have had problems making them. Thar are the options of doing this with
      • Pencils;
      • Leads;
      • Chalks;
      • Pens;
      • And other drawing tools.
    • Coloring like in
      • Paint by number books with a water paint brush with a finer tip can also demonstrate how that skill compares to use of a pen in writing.
      • Children’s coloring books with crayons OR colored pencil; can show how an individual can do repetitive motions without too much physical stress. Comparing older work that was done can assist in determining the uses of the tools and actions with the coloring.
      • Adult coloring books with markers, ink pens, colored pencils, chalks, watercolor pens/ markers, and maybe also crayons;
      • Painting a large portion of painting skill comes in melding colors and layers of types of paint correctly to create the images that are formed. So while it’s a possible skill test it’s not necessarily the best ‘test’, but individuals may share work hassles with painting that impact the results of their work tremendously.
        • Like with coloring, painting uses broader strokes in some aspects of the work while smaller ones in other aspects of the work.
      • Maze games like those done in children’s coloring, games, and skill books, and on the backs of cereal boxes can show the hand control of an individual follow the pattern. BUT t
        • his should be watched, if the individual is slow and seems to be having a hard time they could be having muscle trouble if they aren’t so drugged that the test is invalid anyway.
      • Skill queries if individuals used to be able to
        • Hold a camera for great photos
          • If they can’t hold the camera, when they love using it, it means there’s a problem stopping them from doing what they like.
        • Hold a phone and can’t grip it any more
          • New flat phones, without cases, are really difficult to grip without extra holding tools, older phones were easier to hold but weren’t as comfortable to use over super long periods.
        • Keyboarding
          • If an individual has been a typist, accountant, secretary, writer, or more it’s likely that muscle problems would also minimize their ability to use the keyboard.
        • Craft Jewelry
          • This is a tight and generally tiny task that means fine muscle control.
        • Cook or Chef
          • It’s possible with some modern tools to avoid use of a knife if you’re having trouble in the kitchen, but use of hands, arms, feet in conjunction are common needs acted on with cooking.
        • Do bead work OR strand work
          • This doesn’t need to be an expensive test, buttons OR beads can be gotten in bunches. Popcorn strands like for Christmas with dried cranberries added can demonstrate the action abilities of hands and arms for a smaller cost.
        • Do other crafts
      • Dot-to-dot pictures like those done in children’s coloring, games, and skill books, can allow the past skills to be compared to the present skills and how the users functioning is getting worse OR not.
        • The line work is often as difficult as writing, but it can be harder because of the span of spaces, but it can be easier if the dot to dot image lines are almost all the same in the shape of the image.
      • Other hand use tests could be used, but I’m not sure what they are other then the ones previously mentioned above.

Historical Information References

One of the best options for having past records is handwriting, because over years of time people write repeatedly, at least before the keyboard has become the tool of the writer. The printing of modern students doesn’t have the versatility, speed, and usefulness that handwriting has had for millennia.  So what can we use for doctors to view as handwriting evidence OR other types of evidence AND where may we locate these? We can work to collect different sets of evidence:

By Age with types included &/OR by types with ages distinct

A time line of writing OR other samples of the same &/OR different styles can assist doctors to see the ‘problems’ better if they exist at all. If signs are being shown over time, then the sooner the ‘signs’ are showing & put into record then the sooner they can be visible as evidence for quicker treatment to be approached, hopefully with less cost in life problems, lack of care results, and doctor & tests & nurses visit costs and cares. The record of signs should assist the doctor to help more also.

 

  • Ages 0 to 9.99 writing, coloring, dot to dots, drawing, maze games, hangman games, and more.
    • Childhood writing styles are likely to be bigger and wider than the more advanced writing styles grown with practice over time. The styles developed with writing over time can be ‘determined’ by the children during these ages if they want, and if there aren’t injuries that hinder that style processing. BUT other people may find that they need to try and write consistently regularly, because they have a harder time with it than others.
      • These earliest records may OR may not be used depend on the value of the early writing & action records. The record of these early records may OR may not assist the doctor to help more also.
    • Ages 9.99 to 14 through 16 or 17 writing, coloring, dot to dots, drawing, maze games, hangman games, and more.
      • In the early teen years the writing styles in development start becoming finer and more refined. They may find that they need to try and write consistently regularly, because they have a harder time with it than others.
        • Either because of lack of practice OR because of how they naturally write OR because they have suffered injuries that have caused the muscles, tendons, joints, and more to shift the writing style that’s a normality for them.
      • If signs are being shown over time, then the sooner the ‘signs’ are showing the sooner treatment can be approached. The record of signs should assist the doctor to help more also.
    • Ages 14 up to early 20’s &/or 30’s writing, coloring, dot to dots, drawing, maze games, hangman games, and more.
      • In modern times the writing practice during these times of life is tremendously reduced because of computers, cell phones, and other ‘electronic devices.’ There is still a need to practice writing, because it’s a way to ‘be yourself’ and to connect in life to your past.
        • Reviewing my writing since about 4 has shown me this.
      • If signs are being shown over time, then the sooner the ‘signs’ are showing the sooner treatment can be approached. The record of signs should assist the doctor to help more also.
    • Ages 20 &/or 30 up to 40 &/or 50 writing, coloring, dot to dots, drawing, maze games, hangman games, and more.
      • If individuals are suffering diseases, like Parkinson’s the results over time will alter.
        • “An early indicator of Parkinson’s is a change in the size of a person’s handwriting [AND other aspects of hand work and how it is & has been done over time.] Often, a marked decrease in the letter sizes and spaces between the words becomes noticeable…”
          • This is harder to discern with less samples to compare.
          • If signs are being shown over time, then the sooner the ‘signs’ are showing the sooner treatment can be approached. The record of signs should assist the doctor to help more also.
        • If signs are being shown over time, then the sooner the ‘signs’ are showing the sooner treatment can be approached. The record of signs should assist the doctor to help more also.
      • Ages 40 &/or 50 up to 60 writing, coloring, dot to dots, drawing, maze games, hangman games, and more.
        • If signs are being shown over time, then the sooner the ‘signs’ are showing the sooner treatment can be approached. The record of signs should assist the doctor to help more also.
      • Ages 60 up to 70 writing, coloring, dot to dots, drawing, maze games, hangman games, and more.
        • If signs are being shown over time, then the sooner the ‘signs’ are showing the sooner treatment can be approached. The record of signs should assist the doctor to help more also.
      • Ages 70 up to …? writing, coloring, dot to dots, drawing, maze games, hangman games, and more.
        • If signs are being shown over time, then the sooner the ‘signs’ are showing the sooner treatment can be approached. The record of signs should assist the doctor to help more also.

Rhapsodie’s handwriting, coloring, maze work, and drawing over time with images

[Not done, images are being captured of Rhapsodie’s writing, art, and some other work done over time to compare with the most modern work. BUT that’s taking time which hasn’t been used yet today. Rhapsodie’s writing varies in sizes & styles, at least in some degrees, based on the size of her information and the size of the paper sections OR amounts she has to use. This was much rougher when she was learning to write, but in 6th grade Rhapsodie’s writing was good enough to take notes of a deaf student in that glass after his translator learned to interpret the loops. He could read them right off the paper OR her computer/ tablet/ USB screen.

8.     Trouble Sleeping

https://facty.com/conditions/parkinsons/10-signs-of-parkinsons/8/

Tossing and turning even while deeply asleep can be a sign of Parkinson’s. Some individuals may even fall out of bed during the night. This symptom interrupts sleep patterns and decreases sleep quality, which can exacerbate other symptoms. Half of all people with Parkinson’s disease have muscles that do not completely relax during sleep. This increases the risk of leg cramps and abnormal leg movements at night. Some people even “act out” their dreams by moving their limbs. It is also common for people with Parkinson’s to experience excessive sleepiness during the day [because of not sleeping well at sleep times.

  • BUT Rhapsodie sleeps fine, just super heavy, as well as too much for a normal healthy person at present because of uncared for injuries. Exasperated injuries cause further need for rest to recover and allow more healing for Rhapsodie. BUT her body is so damaged this is very minimal now and it causes more sleep needs.]

9. Constipation [& Leaking Bladder]

Straining to move the bowels can be a sign of Parkinson’s and is also one of the most overlooked symptoms. Parkinson’s affects the nervous system that controls the movement of muscles, so it is logical that it should also affect the bowels and bladder.

  • The bowel can lose its sensitivity and become inefficient, slowing down the digestive process and the movement of waste, leading to constipation.
    • Care is needed to make sure an individual is consuming proper amounts of fiber, so that normal bowel problems are reduced from this assessment. Individuals with other muscle problems will have more knowledge of what is happening, in some ways, than observers who assume they understand without listening to the person suffering something like WHOOPS Disease.
  • The urinary tract actions are controlled by muscles. So leaking bladder is another sign of the muscle weakness that is Parkinson’s disease.
    • Individuals with leaking bladder are more common, but very few of them have Parkinson’s Disease.

10. Excessive Sweating

Parkinson’s disease severely affects the central nervous system. As the disease progresses, changes in the skin can develop. Many individuals with the disease experience excessive sweating or hyperhidrosis for no apparent reason. For women, this symptom can feel similar to hot flashes during menopause. In addition, medications used to treat Parkinson’s disease can cause excessive sweating.

  • Rhapsodie has had some sweating she associates with Menopausal symptoms, but nothing more than that.
  • For the lack of muscle uses the body often finds fat builds up, this can cause excess sweating also, but it does not indicate Parkinson’s Disease most of the time.

[Finding Parkinsons & Treating

The signs above are used by individuals to share with the doctors their Parkinson’s symptoms, but as you read Rhapsodie’s added information you can see how individuals not living with the problems can ‘believe’ Parkinson’s or other problems because of what they think they are seeing. That’s a problem with doctors not treating patients based on what the patients are telling them about things and situations.]

A.   Studies and lab tests

Parkinson’s disease is a neurological disease created by the build-up of the protein called alpha-synuclein. The disease creates problems with motor function and movement, rigid muscles and severe hand tremors. Roughly 60,000 Americans are diagnosed with the disease every year, and it affects up to 10 million people worldwide…

Getting Diabetes with Whoops

Additionally getting diabetes could be a huge issue for the people that aren’t already diabetic. And this disease being such a predominant one for diabetes may be a symptom of cure for diabetics. Especially if the disease was planted as one that can cure diabetes withOUT having bad disease aspects like the sneezes attached. In my opinion this disease being so consistent in symptoms, the EXACT SAME ONES FOR EVERYONE means that it is a nano-virus developed to demonstrate that nanos can cure diabetes even though our society desires to ignore that development. See information at Syracuse University.

There are many different possibilities for issues with Whoops disease that can be misdiagnosed as well as assumed inaccurately because of the general ignorance about Whoops. As these posts have shown there are many cases that with self-care the issues can be reduced OR even eliminated enough to not require any medical attention. BUT doctors who don’t know about Whoops it can be that they misdiagnose and have patient treated inaccurately for issues that really either don’t exist OR exist only on a temporary basis.

Other Connecting Posts

Diabetic’s and Treatments

Whoops Disease Info

Additional Connecting Information

Rhapsodie has written about these issues for multiple reasons:

1) To have a shared written record, that’s useful. 2) To provide info to others to assist them in planning to deal with the horrid medical system of the U.S. 3) To hopefully impact doctors & health carers to do more work than just using reports which may be false.

Pain ASSessment Inaccuracies & Health Issues

Rhapsodie’s Visual PAIN Diary- From September 2013 into April 2017

 Rhapsodie’s ideas to improve Medical ASSESSMENTS by doctors

PAIN Variables

WHOOPS DISEASE-6. Home Treatment Ideas & Facts

I’m sorry everyone, by writing and sharing these symptoms with my animal, males, females, minus the ones from the last posts about other injury symptoms with me that have been ignored because of other injuries with my body that aren’t diagnosed or treated correctly because of stupid pain ASSumptions by doctors.

What Treatments Have Worked With Me, Rhapsodie, Through the Disease

Throughout this blog there are actions that I have found effective in treating symptoms of Whoops Disease, and that have been effective with members of my family also. This list is made from some of the blog posts information previously shared with added details, AND here there is additional info from recent findings:

Males with Rashes

There was a rash years ago that my husband got, and he tried the doctors medications and suffered from trying those ineffective solutions. Recently he got a rash on his back and I placed some Bag Balm on his back, the next day the rash was almost gone and so was the itching.

Itchies for Noses

On and off for years I’ve had an itchy nose end, use of the Bag Balm has been great, and it reduces the itchy for a long time if I use it after my nightly face wash. BUT a care that I also do is to make sure to put it on and only rub it after, it takes about 1/2 hour for the itchy to go away mostly, but up to 2 hours for complete itch removal. AND this works for 24 hours at the least after letting it set undisturbed. If I rub it on and let it set for 1/2 hour then ‘blow my nose’ the itch removal still works.

Scalp Itchies

After taking a shower OR a bath and washing my hair my head gets super dry and itchy. So it means scratching at my scalp, but I’ve found that a pet comb works to scratch my scalp. BUT the best treatment is to scratch at the middle back top about 3.5 inches by 3.5 inches in that area. BUT like with the itchy nose treatment there’s time after doing that before the itching dissipates, and if I keep scratching it doesn’t go away as fast.

Congestion in the lungs

The congestion in the lungs from colds, bronchitis, and other congestion issues like the runny sinuses still happens even though the chamomile tea works great. What I’ve found is that Licorice Root in candies, teas, and even with the powder and extract work great. I do not use the dosage of the containers, about 10 drops of the Swanson’s Licorice Root Liquid Extract works super well and it’s both Alcohol and Sugar-Free.

The sinuses and drippy congestion for females may be worse than it is for males. My mom and I have this issue, I use the natural treatments that work and she keeps going to the doctor for treatments that are ineffective. The allergy medicines, the asthma medications, the cough drops, the cold medicines do not help her breathe better for more than a few hours at a time. BUT my treatments work for longer times. Here’s more from the WHOOPS DISEASE- 2. Females post about used treatments in addition to the effectiveness for me:

  • The only cold treatments that have worked are

    • GINGER for the INFLAMMATION- This is also good against car sickness, use each night means that I don’t have numbness in my arms OR legs, which is from undiagnosed & untreated fractures. In addition my nose, feet, legs, throat, and ears don’t suffer the swelling that lack of use could have caused.
      • Cider vinegar & honey help it taste good, and the Cider vinegar and honey is GREAT for the ACID REFLUX.
    • CHAMOMILE TEA– DAILY for the SINUS CONGESTION
      • This does lead to Asthma diagnosis’ by doctors that don’t do full scale proper tests with proper equipment. Within the first 2 to 3 years.
      • BECAUSE IT IS NOT ASTHMA! THE DRUGS DO NOT WORK for more than making more lung space for the microscopic organisms that have invaded your lungs.
    • LICORICE ROOT– FOR lung DE-CONGESTION
      • The dose for uses is a lot less than packages recommend, but that’s healthier for users because there isn’t the problems with Potassium diminishment in the body. I only use 10 drops of the Swanson’s Liquid Licorice Root extract, when my lungs are feeling bad and when the coughing and sneezing is heavier, even though the packaging says 48 to 56 as a dose.

Acid Re-flux

The acid re-flux issues are problems many people face that’s why there are over the counter treatments for individuals, but those are not healthy to continue. The reduction of potassium in the body the other side effects issues as well as the package warnings, ‘Use for up to 2 years,” which means if the issues stay people keep using the drugs when they shouldn’t. The side effects are likely to cause other health issues also, so the natural treatment Rhapsodie has used continues to be beneficial AND it has improved many health areas for her with the pre-teeth brushing before bed time consistent uses.

  • During sleep the ‘acid re-flux’ happens because your lungs are breathing in moisture from the stomach area, thus causing acid re-flux, so the treatment with a daily dose before bed of:
    • 2 tsp. Unpasteurized CIDER VINEGAR &
    • 2.5 tsp. of real HONEY,
    • 1cup hot water, and
    • aloe juice to cool the drink AND soothe the throat

Teeth brushing after treatments, within an hour generally assist in reducing the acid impacts on teeth. In addition since Rhapsodie uses this with her chamomile tea she has double treatments added into one action.

This treatment is so much better than over the counter OR prescribed acid re-flux drugs because it doesn’t raise the potassium levels in the body AND it works without any prescribed OR drug side effects. For diabetics the amount of sugar for 1 tablespoon of honey has between 17 and 9 carbs depending on the honey brand and type of honey, Raw being a favorite for me. I use raw honey which doesn’t have nutrients boiled out of it with too much heat being used. This has 11 carbs with 40 calories AND because honey isn’t a simple sugar I only need to use 1/2 the carbs with my insulin because like whole wheat AND non-starchy vegetables my body works through it meaning less insulin is needed for my body. In addition there are many nutritional benefits for the body from local area honey AND unpasteurized vinegar of any type.

Wet AND Boils in ears

This has been one of the most annoying things I’ve dealt within the last couple of years. There is so much puss in my ears most days after I wake up that I ended up buying an ear scraping kit. In addition I’ve found that the boils are premenstrual, about 2 weeks before my menstrual cycle it starts forming again. And the day my period starts the boil releases puss and gunk into my ear. What has helped has been using the Povidone Iodine solution sold in the local pharmacy on 2 Q-tips soaked with the stuff at least every other night. AND I make sure to use a separate one for each ear to reduce spreading the problems of one ear into the other ear.

  • Most of my headaches recently have resulted from noise, and I know my ears get clogged. So
    • Using the mix of rubbing alcohol and aloe juice heats and allows the waxy build up to run out and this can be done once a month or so.
      1. I mix up the aloe and alcohol in small container,
      2. Then put a towel on my pillow for each ear,
      3. Then using an eye-dropper fill the ear that’s up, and let it stay in the ear for 3 to 5 minutes, THEN
      4. I tip my head down and do the same with the other ear,
    • This may be repeated if I still feel the need for the release.

Yellowing & Softening Teeth

Yellowing of the teeth happens, the dryer you are. There are issues with teeth softening, it’s looks like rot, but it’s not this happens towards the end of the disease AND up to 5 days after medical treatment it goes away. AND treatment by me includes:

Water blisters that feel like pencil stub bubbles on the end of my fingers

It’s kind of odd because they came about 3 months apart, the one on my thumb I’ve lasted for almost exactly 3 weeks. So there wasn’t popping I use a sugar picker, super sharp needle, and poke a hole and bleed out the excess water in that blister.

Under arm Rashes & Itchiness

The under arm itchies have continued to the present day as have the nose itchies and I treat them the same with Bag Balm, that you can buy in a ‘farm care’ OR pet place.

Rock Hardening Feet for Males over 50

Males over 50 start having their feet harden, and they get feeling like stones. The feet issues may not be able to be reduced with constant feet sqwinching with toes and heals curling in and stretching, these issues definitely get worse with thick and tough shoes being worn. The heated foot & calf massagers may work for this, hand massages also work really well, but it may not stop the rock hardening of the feet completely. The care with this means after treatment taking the time to flex your feet back into normal, with rushing things the stiffened bones and joints in the feet may break if they are not massaged back into use safely. And this can mean wearing reinforcing stockings to reduce the urge to stretch and flex feet that are working more normally again.

Itchy Skin

DO NOT USE FINGERNAILS to itch, this damages the skin and it causes itching to get worse. Instead find a roughly textured cloth or use your fingers/hands to rub away the itch.  This also works with bug bites, because it releases the area inflammation that generally adds to itchiness, but it doesn’t raise up more blood that will increase the inflammation in the healing processes.

Ripping & Cracking fingernails,

The ripped nail edges are being treated with a nail file, because one is carried with me all of the time, my left hand nails are rip cracking the opposite of my right hand on the exact same fingers.

Hangnails & Skin Rips OR Cuts

I’ve not had a lot of these because of drinking so much fluid, BUT use of the Gorilla brand Super Glue to just bought at Walmart, it seals those areas is best and I keep a container in my medicine cabinet, this is used by me because it works longer than the other super glues and it has a resealable lid that works. Larger amounts are available also. In addition if it’s wetted it hardens in place, and generally that washes off in 6 to 12 hours, but the healed area may need re-treatment OR it may not. I also use this on other areas of my skin that rip open a lot easier because of skin losses.

Dry Skin

This has impacted many aspects of my body, that I feel more than others really see. Some areas, like the vagina aren’t had by males, but they may find many of these treatments useful beyond the drink a lot continually action.

  • Dry Skin
    • Making sure to keep drinking; drinking; drinking and the facial & creams that have added glycerine AND aloe juice which also gets added to my cider vinegar, chamomile tea, and honey mix.
    • For my hands using the O’Keeffe’s Working Hands lotion has helped tremendously for that.
    • For my feet using the lotion found in ‘pharmacy’ for feet has helped as has the Gold Bond for Diabetics
  • SCALP Reduce this with super nutritional moisturizing shampoo & conditioner AND making sure to keep drinking; drinking; drinking. I actually use a cheap conditioner, and add honey water with a little vinegar added into the conditioner. About a half and half mix. Then the scalp itch care as mentioned in these pages.
  • Dry vagina means using a homemade douche, container, which I’ve modified from the original by adding a hole at the tip of the inserter.
    • My mix, which works requires dual uses one right after the other to reduce leave behinds.
      • Adding a 1/ 2 with a water & Aloe Vera juice mixed at a ratio of 2/3 water to 1/3 Aloe juice. Doing the math for the individual amounts with the full mixture as a base means:
        • Water- 0.5 (as 1/ 2) ÷ (0.666) or 2/3rds= 0.333
        • Aloe Vera juice- 0.5 (as 1/ 2) ÷ (0.333) or 1/3rd= 0.1.667
        • With the cleansing agent of 1/2 of cider vinegar.

Moodiness

The mood issues with this disease range from feeling misunderstood and uncared for to just being short tempered. This can result in yelling, screaming, and wanting to smash things.

It can be useful to have a punching pillow, bag, towel OR something that makes you feel like the anger, frustration, and more especially from individuals that are ‘believing’ the lies of doctors who are around you all the time believe. If you need maybe even plastic pop bottles, gallon jugs, or other items with some water for weight and a smashing zone so you can feel the whomp of smashing as well as see and maybe feel the smashing results can be good. Take care if this is inside there will be clean up work to be done. In addition it’s super useful when you feel the moods coming on to tell others something about it, so they aren’t hit with your mood when they don’t understand OR feel it themselves and you end up exploding with frustration.

OKAY I’m done doing repeats now, there are additional sets of information in the other Whoops Disease blog posts which are linked below.

Pet Care

The issues with animals are described more in the previous WHOOPS DISEASE- 1. Animals blog post. Here is a bit of that info: A clear sign for animals is the single long cut on both of the front canines, that begins AFTER SNEEZES, THE TEETH which WILL HEAL FINE if the long cuts are cleaned 3 to 6 times before they start healing, with the pet toothpaste & infant brush, AND allowed to fully heal with no touching, if the skin is broken by finger nail or toothbrush after they start healing, then the poor animal has a yucky canine. If the tooth is not brushed the teeth can starve the critter or they can heal with yuck in them.

Doctor’s Misdiagnosis’ Can Cause More Problems

These tropical waterborne microscopic organisms [parasites], are all building the signs of Whoops disease so you may also be suffering. The older ‘medical PDF’ record I found disappeared from the internet, and since then the disease name has changed frequently so all I can tell you now is to be prepared that your doctors will try to treat you for asthma, blood pressure, cholesterol, diabetes, heart disease, lung disease, and anything else they can prescribe a drug for to get you out of their hair AND they will not be treating the problem that’s killing you. Which means you may be demanding multiple tests for waterborne micro-organisms.

If I’d lied and said I’d been in South America, they may have tested for the correct disease. With Whoops disease for testing, a waterborne parasite a urine test is used, and the test needs to be done within 24 hours after the sample is collected. IF the place you go for tests ships in amounts to a hospital lab, it’s likely a bad place to use for this type of test. That’s because from the time of your peeing in the cup until the lab does the test needs to be less than 24 hours. This means that there’s a finite time between sharing the sample and getting the accurate test. If this procedure is not followed, with the lab slip stating 24 hours the results are likely to be TOTALLY inaccurate unless the people handling the test are familiar with it and it’s priority in time, which they aren’t likely to be.

There have not treatments in my life other than the misdiagnosed treatments that actually are done for symptoms that will disintegrate with the real treatment. I mean diabetics may have dry skin that could be a sign of high sugar, so treatment for years for dry skin could kill the people who aren’t tested for the diabetes which is the problem. AND that’s also the case with Whoops disease.  If I get treatment and care I’ll try to have that information shared with you as soon as possible.

Other Connecting Posts

Whoops Disease Info

Additional Connecting Information

Rhapsodie has written about these issues for multiple reasons:

1) To have a shared written record, that’s useful. 2) To provide info to others to assist them in planning to deal with the horrid medical system of the U.S. 3) To hopefully impact doctors & health carers to do more work than just using reports which may be false.

Rhapsodie’s Visual PAIN Diary- From September 2013 into April 2017

 Rhapsodie’s ideas to improve Medical ASSESSMENTS by doctors

PAIN Variables

WHOOPS DISEASE-5. Nano Mites?

What is interesting about living with this disease is that the doctors are always trying to diagnose something else, and they never even look for this being an option.  One reason is because it was listed in the journal I located about 2009 as a tropical microscopic organism and I don’t live in nor have I every visited the tropics.

But according to those records the disease is waterborne from the lower lungs where it starts growing.  It can be passed by drinking the fuzzy water in certain areas of the tropics, and it can be passed by a sneeze from an infected person passing into your sinuses and thus your lungs.  As it is carried on water there may even be life with it beyond the tropics in the right moist environment.  The pattern consistencies of symptoms that don’t vary from individual of sex and type run the same pattern and this causes me to think there could be a nano mite cause.

Nano Mites are microscopic organisms assembled with technology that also live to one degree or another. I have been a diabetic since 5 years of age, and have used insulin shots to care for myself since that age.  Sugar variances are a norm with me, but for the last 20 years tight control of my sugar with the assistance of the insulin pump has caused me to grow away from diabetic problems like nerve damage to the body or to the systems of my body.

My care also means that there are times when low sugar have resulted, but with this Nano Mite possibility I’ve had abnormal situations, like back in 2013 there was one week where I had my insulin pump disconnected for over 20 hours just to keep my sugar normal.  Then there have been the abnormal up and down patterns of base insulin rates also. This assembly of mix is found in some ways with things like the insulin pump that connects to the body of a diabetic for use in treating the sugar problems of a bad pancreas.  Heart pumps, artificial joints, symbiotic brain connections, and other systems are in use and existence, beyond that for me there is the:

  • Eye flickers where the right eyelid, the right eyelid ONLY, jumps for a period of time and proceeds to get worse for about 6 months.
  • Abnormal itchy repetition, mostly avoided by me because of rubbing not scratching the itchy areas almost 2 years into this disease.
    • The extensiveness of this itching never extends beyond the exact same location on the body when it comes again years later.
  • Vocal- Acid Reflux PROBLEMS that everyone seems to get.
  • Left Eye Skin Tab that will NOT go away no matter the treatment.
  • Behind the ear bubbles, IT IS NOT A PIMPLE, in about 2 years it just disappears.
  • Diabetes Designation to any female who acquires this disease.
  • High Blood Pressure problem to any male who acquires this disease above a certain age.
  • The Weird Hunchback Acquisition TO ANY YOUNG MALE FOR I think 4 weeks.

What’s really weird about the whole situation is that the systems of everyone have exactly the same problems.  I’ve been living with doctors doing only what they are familiar with in making bodily diagnosis.  My grandfather died from  a TROPICAL SPRU (I think that’s a wormy leech that attached to his intestine walls, that he picked up from drinking out of a water fountain in Syracuse, NY over 20 years ago.) Maybe you know of or have suffered also from Whoops Disease symptoms.

For me the worse part of the whole situation has been that years ago I located an article on tropical parasites and symptoms for the Whoops Disease were fully shared from an doctoral analysis. BUT I have NOT been able to relocate that article or the disease name as located in that article. When I originally shared the name of the disease with my PCP, she had her office research to find the modern updated disease name, and in that research the urinary test to be examined within 23.99 hours by the testing facility was required.

I think my doctor thought I was being a nincompoop, so the only person’s supporting my investigation and the symptoms displayed were the other office nurses who had seen my suffering and had taken the time to read the full instruction set up for the test.  In fact the lab slip for the test was NOT FILLED OUT CORRECTLY missing the time, my excitement for getting proper care & my trust in the nurses at the lab caused me to only mention that time issue NOT TO WORK TO MAKE SURE I WROTE THE INFORMATION IN CORRECTLY.  So I still suffer today, with no name to share with you, no other information either, which means you’ll have to continue suffering also.

I AM so SORRY!

Other Connecting Posts

Whoops Disease Info

Additional Connecting Information

Rhapsodie has written about these issues for multiple reasons:

1) To have a shared written record, that’s useful. 2) To provide info to others to assist them in planning to deal with the horrid medical system of the U.S. 3) To hopefully impact doctors & health carers to do more work than just using reports which may be false.

Rhapsodie’s Visual PAIN Diary- From September 2013 into April 2017

 Rhapsodie’s ideas to improve Medical ASSESSMENTS by doctors

PAIN Variables

WHOOPS DISEASE- 4. More!

The previous posts described some of the symptoms of what my family and I have been suffering.  With the posts about MALES; FEMALES; and ANIMALS., the disease is outlined, but the doctors are still ignorant of most of the effects on people and how it is in the United States.

The sneezing, with this disease, is ridiculously consistent & painful. Since I believe this infection was passed to me in anothers sneeze, it means that the sneezing can pass this to everyone and anyone else that breathes any moist bits of a sneeze. I’m not sure how many generations of this disease continue through, but I know I was an individual that got this from another person and I passed it on to my family. So sneezes are loud, eventually they hurt, and they cause other body functions to be harder to live through OR even live around. It’s a big pain when you sneeze and pee leaks out because my, and maybe your, bladder feels like it’s being squeezed.

In addition I’m not sure if everyone has this or not, but these additional symptoms & at times treatments are working with me and possibly you also.

  • Mole on the face, left cheek, that moves from lower check to upper face almost to eye AND then disappears with treatment.
    • You don’t need to worry about cancer with this, if you’re having all the other symptoms also.
    • Has not been treated by me, I’m waiting on doctors who think symptoms are a bunch of other issues connected to the weight gain from this disease and poor eating habits they ASSume I have:
      • Higher cholesterol, peaks with LDL’s at 142, which is close to the 139 for treatment that allows organs to not get squashed by the excess moisture in the body.
      • Odd sugar flow aspects, people without diabetes get diabetes for no discernible reason. And people with diabetes have sugar variation weirdnesses regularly.
        • Recently I had a whole week where if I took a bath I needed to disconnect my insulin pump, with a 3 to 8 hour bath that has meant no incoming insulin, but that’s the only way to avoid low sugar attacks. I got out of the bath with my sugar at 102 after 4 hours of no insulin and normally that would have left me with sugar over 300.
      • Mood swings;
      • Head aches;
      • Fevers;
      • Constant head congestion & chest congestion which I treat as was described on previous pages.
  • Pimples on back of neck & middle of back, for women near bra strap, also at the groin, but for men it may not be happening if it is, it could be in another or similar location.
  • For women- with the mid cycle a big pimple blister appears on the inner butt cheek,
    • I have treated mine with BOIL EASE.
      • For women the pimple lasts until your period and fades almost away into the next cycle with no treatment needed after the period ends.
      • I do not know if men have this happen ,in a way, also BUT they can try the BOIL EASE for care of pimples & boils.
      • it works for me and can be bought at pharmacy in stores OR pharmacies that have the supply OR online.
  • Nasty headaches, water on skin treats these. Either water on the head, hands, body, anywhere.
    • If a soaking bath can’t work for you, the wet cloth on the head, needing to be remoistened regularly works, I use a hat to hold that on my head.
    • OR soaking a hand in a bowl or sink of water works also, but prunies result.
  • Often these are late afternoon evening problems, so taking
    • a soaking bath for around 15 to 20 minutes OR taking a shower for 30 to 40 minutes works deleting the headache until it comes again.

Because of that there are more reasons for me to share with you some X-rays of my body and how it is not looking right.

Bone Body Effects

The pictures of my body from April of 2015 show comparable differences with the pictures of July 2016, the pictures were taken because of injuries that are not seen, in fact I can’t see through the bones like the X-ray is supposed to show.  The surfaces of the bones in the pictures are incorrect for viewing any fractures.  When the anterior rear outside of the Tibia is damaged or the far bottom outside of the Ulna taking pictures of the interior or the fore angle will result in nothing.

I am not having problems on the inner sides of my bones the easily viewed areas of the Tibia or Fibia’s, but we have a medical system of this is common, and of course no uncommon things ever happen. The problems are all on the outer back inner sides of the Tibia’s, but the one injury to the right leg has bent the fibula out, damaged my right hip, and has added stress to the left leg. Generally doctors only look to see what they have found commonly in the past, uncommon situations goof their diagnoses up because they aren’t trying to find the abnormal, they are not taught to be investigators only prognosticators.  And even though our bodies are systems like computers, our actions and lifestyles are never the same.

Body Changes Displayed

NO PICTURE LIKE THESE WILL SHOW ANYTHING, specially when the X-ray mathematics aren’t correct for the situation.  These pictures are like taking a picture of the driver’s side of the car for the insurance when the key slash is on the passenger side of the car.  A REAL body exam is needed, because these are not normally situated fractures.  But this post isn’t about the stupid medical system and dumb doctors and technicians instead it’s to show the effects visually of the Whoops Disease on Rhapsodie’s body.

April 2015 Pictures

The lost and missing X-rays from 2014 aren’t available for me to share with you, but the ones from April 2015 are:

Inner LEFT LEG

Blog- Left inner leg

LEFT ARM thumb out to the left,

Blog- Left Arm thumb out to the left

Notice that weird rim around the leg, it’s not fat or muscle, because fat and muscle is denser so it displays with more whiteness than skin.  These pictures display the weird rim edging the body, but there is a lot more in the newest pictures and the contrast is a lot more noticeable.

July 2016 Pictures

The picture above of the left knee and the left arm are not at the exact same angles, but here are the comparisons.

Inner LEFT LEG

Blog- Left Leg- July 2016

LEFT ARM, palm down & thumb out to the right,

Blog- July 2016- Left Arm Palm down & Thumb towards the right

What’s weird here is how massive the glow package around the skin is, in comparison to the pictures from the previous year there is a large difference. Which is shared below in the comparison section.  But notice that the bone is not visible completely through, there is only a picture of the uninjured drivers side, not the messed up passenger side.  Of course the car insurance companies work to examine the broken and displaced vehicle sections not ignoring the car owners because it saves them money, effort, and time.  But of course the medical profession wastes people’s lives and their money because they don’t listen to the patients, they do what they’ve been taught only.  They do not listen or work to compare properly.

Comparisons of images:

Here are my comparisons of the visual images I have, of course the files were not shared completely either, because on both my disc sets half of the pictures are missing.  You can see blood vessels &/or nerves in the surrounding tissues, but you don’t see the mass of fat or muscle.  Because an X-Ray uses a “stream of electromagnetic radiation shorter [than the] wavelength [of] light” there is often a very detailed and reflective image shared. (Greenfield, 2007) With a water mass over the normal amounts surrounding the body bones, it is likely that the radiation fails because of the reflection & refraction potentials of water not calculated into the X-rays.

Inner LEFT LEG

Blog b- Left Leg Comparisons- 4-2015 & 7-2018

Yes the angles are not the same, that’s why the mass of the bones in the right picture look larger than the mass of bones in the left, but the ankle to knee tibia and fibula are almost the same, the fibula is straighter in the left picture.  Close ups of the thin views display blood vessels and nerves.

LEFT ARM, April 2015- Palm up thumb out to the left VS. July 2016- Palm down & thumb out to the right,

Blog b- Left Arm Comparisons- 4-2015 & 7-2020

It’s my belief that this is a water mass added to the views, in fact the visuals of the zoomed sections display blood vessels and possibly more too.

Zoomed Blood Vessel Views

Generally the softer body tissues don’t display very easily. The mirror systems with refraction and the other systems with reflection can vary the x-ray images if the mathematical formulas are not shifted for the variations, and this a good reason that Rhapsodie’s X-rays are not displaying the refraction of the magnetic pad only the reflection from the surfaces of solids as well as the show throughs of the surfaces with no density.

Left Leg Zoomed

Blog b- Left Inner Leg

Left Inner Knee

Blog b- Left Inner Knee- 4-2016

Left Ankle

Bloodvessles and upper ankle bone

So the display of blood vessels is likely easier on my body presently than on the body of a person without the water weight.  This amount of water, if it is water, means that my body water mass is higher than 70%.

For example if I used to weigh 150 pounds and now I weigh 180 but I’ve decreased calories and have increased fluid intake, and these pictures are displaying water, then there was at least a 15% increase in body water amounts.  It’s likely more than that, but so far I’m ignored as being a pain because the doctors are ignorant.

My body looks fat, but the doctors have not done a body composition test which measures the amount of fat versus bone and muscle.  Nor has there been a pain test.  AND my left shoulder became dislocated for the first time in my life early in July of 2016.  Living in discomfort for about 6 weeks still extends now, after my movements in an abnormal situation realigned my shoulder, awkwardly.  The visit to Dr. Terhaar an Orthopedic surgeon in Western NY on September 1st after an emergency room visit on August 28th verified for me my pain tolerance.

Additionally examination of the x-ray technician’s manual demonstrated many different equations for the calculations including the real Body Composition test, not the fake, BMI based on a weight assssumption  for fat with because of person’s height & weight. A person that is a full grown adult with fine bones, and doesn’t eat a lot or doesn’t exercise a lot may be a normal weight of 90lbs, which is a healthy weight for them. Another person that’s the same height, who jogs, boxes, does a lot of exercise and weighs 110 pounds can be super healthy, while the doctors judge that person as being overweight for their height and bone mass, AND muscle weighs more than fat, so the doctors can be totally wrong.

Dr. Terhaar informed me that he had suffered a dislocated shoulder in the past, while he was testing me I used my right hand on my shoulder to realign it again because it had slipped again.  Being out for so long could have damaged my muscles as well as other areas, the doctor informed me further examination with an MRI and another doctor is needed.  But what was most affirming for me was the slightly nauseous pained look on his face when I made the noise.  It could have been because he associated that sound with the pain he suffered previously, or it could have been because the sound bothered his ears.  At the end of the visit I felt like there was at least one doctor that would work to find that facts before drawing a conclusion that could be incorrect based on gossip and the common situation observed.

Other Connecting Posts

Whoops Disease Info

Additional Connecting Information

Rhapsodie has written about these issues for multiple reasons:

1) To have a shared written record, that’s useful. 2) To provide info to others to assist them in planning to deal with the horrid medical system of the U.S. 3) To hopefully impact doctors & health carers to do more work than just using reports which may be false.

Rhapsodie’s Visual PAIN Diary- From September 2013 into April 2017

 Rhapsodie’s ideas to improve Medical ASSESSMENTS by doctors

PAIN Variables

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