Me & my speech.


There are many different possibilities for issues with Whoops disease that can be misdiagnosed as well as assumed inaccurately because of the general ignorance about Whoops. As these posts have shown there are many cases that with self-care the issues can be reduced OR even eliminated enough to not require any medical attention. BUT doctors who don’t know about Whoops it can be that they misdiagnose and have patient treated inaccurately for issues that really either don’t exist OR exist only on a temporary basis.

Some of these issues & diseases can be diagnosed because of Whoops:

Care is needed in some of these cases because treatments that allow Whoops to get worse could cause additional Whoops healthcare problems and health conditions that cause problems.

Asthma-

  • The trouble with the Whoops is that the microscopic organisms in the lungs make it harder to breathe. The inhalers that open up the lungs allow these organisms more play ground to make it even more difficult to breathe with less chance of breathing easier every single time an inhaler is used.
    • One of my doctors prescribed inhalers for me, because nothing was improving after months on the devices she prescribed another ‘medical’ inhaler. It was burning my throat. A visit to the ER had that doctor taking me off all inhalers accept the albuterol. I have only used that once since, because a visit to a lung specialist with an expensive test on a huge machine resulted in “You have no asthma”. So because of the chamomile tea, ginger, black licorice root at times, and licorice tea helping me, I’ve not even tried to use an inhaler at other times even though my breathing is really hard in the moist spring, summer, and fall air.

Bronchitis/Pneumonia-

  • The lung issues from the organisms also mean that lung infection possibilities are greater, so more care with health is a necessity. These organisms aren’t going to be killed by antibiotics, your healthy bacteria will be killed and you’ll suffer more issues.

Eczema-

  • Dryer skin is almost a guarantee with this disease, the less moisture you consume, the dryer your body is, the less baths you take, the more likely you’ll suffer symptoms more like Eczema.

Acid Reflux-

  • You MAY suffer this even if you never have previously, my mom and I both have this issue now since Whoops.

Diabetes-

  • You MAY suffer this even if you never have previously, there is a need to treat this with the Whoops, BUT it could be immediately OR within a few hours after treatment that the diabetes gained from Whoops goes away.

Sleep Apnea-

  • This seems to be worse for males & it also seems to be horrid for those that don’t take, at least 15 minute, baths once a week.

Narcolepsy-

  • “The signs and symptoms of narcolepsy may worsen for the first few years and then continue for life. They include: 1. Excessive daytime sleepiness. People with narcolepsy fall asleep without warning, anywhere, anytime…” (https://www.mayoclinic.org/diseases-conditions/narcolepsy/symptoms-causes/syc-20375497 ) BUT I’ve found with Whoops though I’m extremely tired so much of the time, I only nod off when I let myself. Like in the bath OR leaning a backrest. My fractures are also reasons for lack of energy.

High Cholesterol-

  • I’ve had my cholesterol up at around 138-142LDL, which is an issue…BUT since I’ve been starving myself, my body is working to protect my organs. I think the cholesterol is likely protecting my organs from being choked to death by the masses of water in the body. AND for Whoops Disease treatment with the electric shock hitting the organs, the bioelectrical impedance with the extra LDL cholesterol fat around the center of my body may actually assist the organs in being more protected against the electrical shock then if those organs were just surrounded by water like my skin layer and rest of the body is.

This also means those body areas are likely to assist in better recovery because of the electrical charge ‘dissipating’ versus spreading with water. The recovery should be a bit faster, because my body isn’t overloaded with electric hitting my core, like it would be if my cholesterol was in normal ranges. Some more about this is added in the blog post about body composition tests.

High Blood Pressure-

  • If you already have high blood pressure that’s likely to be an issue after treatment again if it’s not with the disease. BUT every single individual in my Whoops Diseased family has had an issue with high blood pressure, BUT every single one of us has no issue now. So with Whoops Disease this was only temporary as an issue for all of us.

Hyperthyroid-

  • My mom and I have been diagnosed with thyroid issues. I’ve been getting the pills for over 10 years now, but the white ones of any brand eat my throat, so I always need the pink ones. AND they make me super sleepy all the time. Dosage wise the amounts are really small, less for my mom than for me, and the amounts once reaching 125mg was too much for me, 112mg has been better, but not more has ever been needed. That’s after going almost a year with none, which is abnormal, because doctors say, “amounts go up regularly” and doctors predict, “you’ll need this for the rest of your life.” If this was because of the Whoops it’s unlikely that it will be needed for life and it’s unlikely that the rates will ever go up through the disease.

Shakes that are NOT Parkinson’s Disease

Assumed as Parkinson’s by Whoops Ignorant People- [No pictures are in these pages yet, they are prepared and they are placed in the document this information was copied from, but they still need to be added to the media files and these pages…sorry.]

BUT it’s Not Likely to be Parkinson’s even though some similarity with tremors, for the majority of Whoops people. The shakes aren’t that dramatic OR even noticeable when hands aren’t empty, and they have no impact on holding things, not like with real issues.

  • This shaking only happens when nothing is being held or touched by that hand. So writing, drawing, sewing, cleaning, eating, and typing is not bothered by the soft shakes.  For some people they may think you have Parkinson’s Disease because of this shaking- the article 10 Signs of Parkinson’s Disease, from June 12, 2019 with very descriptive images also tells us a list of Parkinson Disease signs which ‘non-Rhapsodie people could assume she has, because they don’t live in her body.”
  • “…The loss of these neurons causes essential neurotransmitter levels to decrease, particularly the production of the neurotransmitter dopamine [it’s likely blood tests can show dopamine levels, but it’s possible that like sugar levels the normal amount needs to be correct for the individual’s height, weight, bone mass, and life style]. This, in turn, leads to abnormal brain activity that affects one’s control of muscle movement. Older individuals are the most common group diagnosed with Parkinson’s.
  • If you’re an individual like me some of your relatives may even assume that your symptoms are other diseases. AND in some cases the options you have for showing that it’s something else like Whoops Disease are really limited, especially when doctors don’t even know about issues and aspects of care for a disease like Whoops which is man made. In addition family & doctors may hear of OR believe that you are suffering diseases, BUT taking the time to research the disease can help you assess the accuracy of what is being diagnosed. AND because you live in your body 24 hours a day ever since you were born, you’re more likely able to better know your body in many aspects than assumers who aren’t you.

Parkinson’s Disease Versus Whoops Disease

My father was concerned that I was suffering Parkinson’s Disease, but my research & the evidence I’ve prepared show that’s not the case. Parkinson’s has some other issues that are, at times, similar to the issues with Whoops Disease, BUT the disease aren’t the same. I’ve listed a set of Parkinson’s symptoms below with my comments and at time images about my issues added.

1. [Resting] Tremors-

[With Parkinsons]…usually, this begins with the trembling or shaking of one finger. Sometimes the hand or foot on one side of the body experiences tremors or, in rare cases, the face or jaw. The tremors usually begin when the affected body part is relaxed, which is why they are called “resting tremors.” Not all tremors are symptomatic of Parkinson’s, however.

[This is why looking at more than one sign is vital for trying to determine any issues being suffered. I’ve had only some slight tremors in my right hand, and also everyone I’ve heard of suffering this disease has this issue after they get into the last third of the disease. Plus recently my trembling has been mostly after being too tired, when I go to bed I start trembling. My hands had ‘the shakes’ for about 6 months, so you may only have issues for a time also.]

2. Muscle Rigidity

“However, those with Parkinson’s experience stiff muscle tone. This means the muscles of an affected body part do not relax completely even at rest…[I am suffering injuries, but my muscles are remaining flexible, can be rubbed, and work without rigidness when not being overworked. They relax fully when I sleep as long as I don’t move and hurt myself awake, in fact I relax so much that my arm goes asleep and numbs, which means I have to awaken it because it feels dead, that’s not a rigid muscle, that’s a blood flow pressure issue.

  • Muscle rigidity can be felt with rubbing and soothing of body parts, it sort of feels like how muscles do after extreme exertion OR how feet sometimes feel after getting out of high heeled shoes. You know how when you feel a hard muscle because it’s been overused OR suffer stiff feet from bad shoes OR moves.]

3. Slowed Movement

With Parkinson’s– “Also known as bradykinesia, slowness of movement [with] Parkinson’s disease … causes people to perform ordinary activities, such as walking, moving, or changing clothes, more slowly than normal…” [Imagine trying to walk or move with air pressure casts on areas of your body. It’s harder to move and thus people perform slower to allow them to complete their actions with moving. AND this is generally for all movements, not just specific types of movements.

  • For me I move slowly because certain lifting of items, moving of items, walking moves, standing moves cause fresh pains to shoot out. Putting spoons back in the silverware drawer one day had me screaming out in pain because of an unexpected shooting pain, 3 days ago changing the bedding caused my left lower leg to shoot out pains at me 3 times because of the movement… which I’ve avoided since. But other actions like cooking take a lot of effort and energy, plus because of limited activity muscles aren’t as supportive as they used to be in protecting my bones from moving issues.

This has grown worse over time because my injuries have remained uncared for, and the only prescribed drug that really reduces my pain is an antibiotic. This means I am cautious because the pain is not good nor do I think the doctors will ever treat the problems because they haven’t as yet.

  • I had a painkiller, a steroid drug; and only took 2 doses of the 7 because of the Penicillin in the drug which I’m allergic to causing rashes & itchiness. That drug relieved me of pain for almost 7 days, and cautiously I did enjoyed activities like walking up to the pond once, cleaning the house, doing dishes, cooking dinner, but after that ‘pain killer’ dissolved out of my system I had 2 months unable to move normally OR do almost anything because of further injuring my body additionally while the drug was in my system…now I take other natural treatments. Other issues with doctors are also blogged about if you’re interested.
4. Change in Posture

https://facty.com/conditions/parkinsons/10-signs-of-parkinsons/4/

Postural instability is common among people with Parkinson’s and usually appears in the LATER stages of the disease…may be unable to maintain balance in general … Turning, pivoting, and standing upright also become difficult.” [This makes sense because with the muscles ‘going rigid’ the other parts of the body working under and around the muscles have less use AND less repair advancement. It’s sort of the like body is atrophying while the individual is not resting on a bed OR dead.

Rhapsodie’s posture is still very good, her movement hindrances are because of the pain from ripping bones AND the rheumatoid arthritis resulting from the lack of bone care over the years. Her balance is still good, but she works really hard in moving to not hurt, so others could think she has posture issues.]

5. Weakened Facial and Throat Muscles

https://facty.com/conditions/parkinsons/10-signs-of-parkinsons/5/

  • “…The face tends to have a fixed, vacant expression called the “Parkinson’s mask.” Loss of facial muscle movement restricts facial expressions, including smiling, frowning, and laughing.
    • [The image on the website reminds me of individual’s I’ve seen with Downs Syndrome.
    • Rhapsodie has no facial problems other than the blinking of her eye, which isn’t happening anymore. She doesn’t smile as often being a companion with the T.V. & her reading/ writing most days without any discussions with other people.]
  • Similarly, weakened throat muscles cause the individual’s speech to become low-toned, unclear, and sometimes slurred.
    • [Rhapsodie’s indistinct speech happens because of limited interaction with other people, which has meant lazy talking styles.
    • Her sore throat is strong, just sore all the time.
      • Muscles in use get sorer than muscles that aren’t being used.
      • Unused muscles get itchy feeling because they need movement to keep the bloodflow to be feeling good. That’s why individuals wearing casts have itchiness, the skin issues are only a part of that factor, then there are the issues with limited blood flow in areas of the muscles that are familiar with those actions.]
    • Choking, coughing, and drooling may develop at advanced stages.
      • [Rhapsodie has had coughing with the sneezing & sleep drooling because of the masses of water in her body. The coughing began early in the disease, the sneezing within the first 2 years; the drooling was a situation of the previous 2 years, with NOTHING of the drooling now. Additionally she knows this is not Parkinson’s because
        • Coughs leave a dried glittery white mass on any darker materials. It’s such a mess that it looks like glittering shimmer makeup but coughed OR sneezed onto nearby stuff.
        • The sneezes cause the same issues; these are the disease remains that die as they dry. BUT look like glitter glaze used on nails and come from the wet releases.
      • Dry lungs really reduce this hassle, the more moist the air is the more coughs & sneezes that are released. The WHOOPS DISEASE nano microorganisms are waterborne, meaning they need water to live and reproduce. Have a super dry house, with less than 20% humidity 3/4ths of the year mean Rhapsodie continues to fight them choking her to death.]

6. Freezing Gait

https://facty.com/conditions/parkinsons/10-signs-of-parkinsons/6/

“…People with Parkinson’s sometimes hesitate to move forward and report feeling as if their feet are glued to the ground…” [This sounds like something with the muscle atrophying is swelling OR causing nerves in those areas to not feel enough to move. It sounds like they are not feeling ‘some’ of their foot areas as much. With individuals laying in beds, they say that they should be turned to keep them from having body parts atrophy, harden, and weaken areas of skin, bones, muscles and more.]

7. Small[er] Handwriting & Other test possibilities for fine motor skills

Images of Rhapsodie’s writing & artwork over time have been collected as the evidence that she does NOT have Parkinson’s, they are not added yet to this blog.  

If you take your car to the mechanic for an overall check with mention of noises & wiggles of the front end in driving and they change the oil and check the tire air pressure, but then your tie rod collapses, OR your brakes fail to work, OR the noise and the shaking also continues so that you go to other mechanics that read the report of the previous mechanics time and again. So they don’t do the work to fix the struts OR rotors OR brake pads and you eventually end up selling that car you’re unlikely to ever want to return to those mechanics for vehicle service. Plus if they were paid by you for service to your car it’s likely they can also be sued for lack of care that they were supposed to do. That could be multiplied if the mechanics lack of care caused further injury & problems for you and your family.

https://facty.com/conditions/parkinsons/10-signs-of-parkinsons/7/

“An early indicator of Parkinson’s is a change in the size of a person’s handwriting [AND other aspects of hand work and how it is & has been done over time.]  Often, a marked decrease in the letter sizes and spaces between the words becomes noticeable…” [but more can be found if there is a way to learn beyond just using handwriting. Plus there’s a need to make sure to get the ‘past’ in a recordable style that is of use in determining the situation if the ‘patient’ doesn’t tell the doctor and if the doctor doesn’t listen to the patient.]

Some Test Options Including & Beyond Handwriting Alone

Options for testing are added here because Rhapsodie’s handwriting sizes have shifted for many years, so that’s no evidence against Parkinson’s. The fine skill control for doing work, like with the pen, can be tested in other ways also.

  • Change in the Size of Handwriting
    • Handwriting often shifts and changes sizes. Over time people develop a style of writing, like Rhapsodie has based on where she’s writing and how much paper she has available for what she’s trying to write.
    • So I’m assuming because of the muscle atrophy, the amount of muscle, tendon, and skin flexibility with these actions ‘rusts’ which means to write requires smaller, slower, and more controlled writing work efforts.
  • Paper Folding
    • Origami– “…[A]nimals and flowers of Japanese origami…”- If a person has never done this it can be a harder test for them if no directions are shown with the folding, but if there were numbers, letters, colors, or designs and a sheet of directions to create the shapes the folding shouldn’t be a huge hassle. The skill of a new person will not be as fast or as great as a more experienced origami worker, but it could demonstrate issues with muscles in hand uses also.
    • Folding fans– if a person has never done this it is an easily perceived action, and there are generally the simple back and forth fold that drives the style for these fans;
    • Folding paper airplanes– if a person has never done this it is an easily demonstrated activity;
    • Zhezhi. “…Traditional Chinese paper folding concentrates mainly on objects like boats or hats rather than the animals and flowers of Japanese origami…”
    • Paper flowers, could be made easily with a couple sheets of paper with a tack OR a swivel paper snap going through.
  • Button sewing on;
    • if a person has never done this it is an easily taught action;
  • Snowflake Cutting– This skill uses hands and scissors to get done, the folding of the paper, the holding & cutting of the paper, and the opening of the paper snowflake designs are all hand muscle skills.
    • This work doesn’t need a lot of experience to be done, but if the individual trying the work is being tested for Parkinson’s disease it can demonstrate how hand uses are ‘stiff’ and how use of materials & tools is impacted by the hands.
  • Makeup application can be a sign also-
    • Like having the individual with the possible Parkinson’s disease apply nail polish to their self AND also possibly onto others.
    • Other make up application processes can shift depending on the skill levels of the applier and the result desires for the test information.
  • Hair work can also be a good test- this depends on whose hair and the type of hair they have also. The longer hair which needs braiding is going to be more difficult for a person with hand troubles.
  • Seam repair;
    • if a person has never done this it can be a harder test for them;
  • Knitting– individuals hold the knitting needles with both hands, so if a person has never done this it’s not a good test for them;
  • Crocheting– individuals don’t need a crochet hook for a simple loop, but the hook allows them to feed and grab the material with one hand doing the needle work and the other holding the weaving strands generally. The weaving is easier with the hook than the fingers for many strand materials and sizes.
  • Cross Stitch– this is following a pattern on material for weaving in and out,
    • Plastic grid sheets, can allow cross stitch tests using yarn and a blunter yarn needle.
    • Canvas backings, the canvas sizes vary, but the holes are way smaller than with the plastic grid sheets. This work is generally done with embroidery floss or similar threads, which come 6 OR 8 strands combined.
      • The strands need to be separated to be worked so that’s more muscle testing also.
    • Macramé uses larger strands, plant holders are often created using macramé weaving; since the strands are more ropey in texture they are rougher for the hands, but they are easier to grip also.
    • Weaving– I’ve never done real weaving, my only experience is weaving potholders with the device that allows square potholders to be woven with use of weaving.
    • Drawing; unlike coloring in the lines is less defined, so it’s easier for those that are losing skill to rearrange creations to seem normal even when they have had problems making them. Thar are the options of doing this with
      • Pencils;
      • Leads;
      • Chalks;
      • Pens;
      • And other drawing tools.
    • Coloring like in
      • Paint by number books with a water paint brush with a finer tip can also demonstrate how that skill compares to use of a pen in writing.
      • Children’s coloring books with crayons OR colored pencil; can show how an individual can do repetitive motions without too much physical stress. Comparing older work that was done can assist in determining the uses of the tools and actions with the coloring.
      • Adult coloring books with markers, ink pens, colored pencils, chalks, watercolor pens/ markers, and maybe also crayons;
      • Painting a large portion of painting skill comes in melding colors and layers of types of paint correctly to create the images that are formed. So while it’s a possible skill test it’s not necessarily the best ‘test’, but individuals may share work hassles with painting that impact the results of their work tremendously.
        • Like with coloring, painting uses broader strokes in some aspects of the work while smaller ones in other aspects of the work.
      • Maze games like those done in children’s coloring, games, and skill books, and on the backs of cereal boxes can show the hand control of an individual follow the pattern. BUT t
        • his should be watched, if the individual is slow and seems to be having a hard time they could be having muscle trouble if they aren’t so drugged that the test is invalid anyway.
      • Skill queries if individuals used to be able to
        • Hold a camera for great photos
          • If they can’t hold the camera, when they love using it, it means there’s a problem stopping them from doing what they like.
        • Hold a phone and can’t grip it any more
          • New flat phones, without cases, are really difficult to grip without extra holding tools, older phones were easier to hold but weren’t as comfortable to use over super long periods.
        • Keyboarding
          • If an individual has been a typist, accountant, secretary, writer, or more it’s likely that muscle problems would also minimize their ability to use the keyboard.
        • Craft Jewelry
          • This is a tight and generally tiny task that means fine muscle control.
        • Cook or Chef
          • It’s possible with some modern tools to avoid use of a knife if you’re having trouble in the kitchen, but use of hands, arms, feet in conjunction are common needs acted on with cooking.
        • Do bead work OR strand work
          • This doesn’t need to be an expensive test, buttons OR beads can be gotten in bunches. Popcorn strands like for Christmas with dried cranberries added can demonstrate the action abilities of hands and arms for a smaller cost.
        • Do other crafts
      • Dot-to-dot pictures like those done in children’s coloring, games, and skill books, can allow the past skills to be compared to the present skills and how the users functioning is getting worse OR not.
        • The line work is often as difficult as writing, but it can be harder because of the span of spaces, but it can be easier if the dot to dot image lines are almost all the same in the shape of the image.
      • Other hand use tests could be used, but I’m not sure what they are other then the ones previously mentioned above.

Historical Information References

One of the best options for having past records is handwriting, because over years of time people write repeatedly, at least before the keyboard has become the tool of the writer. The printing of modern students doesn’t have the versatility, speed, and usefulness that handwriting has had for millennia.  So what can we use for doctors to view as handwriting evidence OR other types of evidence AND where may we locate these? We can work to collect different sets of evidence:

By Age with types included &/OR by types with ages distinct

A time line of writing OR other samples of the same &/OR different styles can assist doctors to see the ‘problems’ better if they exist at all. If signs are being shown over time, then the sooner the ‘signs’ are showing & put into record then the sooner they can be visible as evidence for quicker treatment to be approached, hopefully with less cost in life problems, lack of care results, and doctor & tests & nurses visit costs and cares. The record of signs should assist the doctor to help more also.

 

  • Ages 0 to 9.99 writing, coloring, dot to dots, drawing, maze games, hangman games, and more.
    • Childhood writing styles are likely to be bigger and wider than the more advanced writing styles grown with practice over time. The styles developed with writing over time can be ‘determined’ by the children during these ages if they want, and if there aren’t injuries that hinder that style processing. BUT other people may find that they need to try and write consistently regularly, because they have a harder time with it than others.
      • These earliest records may OR may not be used depend on the value of the early writing & action records. The record of these early records may OR may not assist the doctor to help more also.
    • Ages 9.99 to 14 through 16 or 17 writing, coloring, dot to dots, drawing, maze games, hangman games, and more.
      • In the early teen years the writing styles in development start becoming finer and more refined. They may find that they need to try and write consistently regularly, because they have a harder time with it than others.
        • Either because of lack of practice OR because of how they naturally write OR because they have suffered injuries that have caused the muscles, tendons, joints, and more to shift the writing style that’s a normality for them.
      • If signs are being shown over time, then the sooner the ‘signs’ are showing the sooner treatment can be approached. The record of signs should assist the doctor to help more also.
    • Ages 14 up to early 20’s &/or 30’s writing, coloring, dot to dots, drawing, maze games, hangman games, and more.
      • In modern times the writing practice during these times of life is tremendously reduced because of computers, cell phones, and other ‘electronic devices.’ There is still a need to practice writing, because it’s a way to ‘be yourself’ and to connect in life to your past.
        • Reviewing my writing since about 4 has shown me this.
      • If signs are being shown over time, then the sooner the ‘signs’ are showing the sooner treatment can be approached. The record of signs should assist the doctor to help more also.
    • Ages 20 &/or 30 up to 40 &/or 50 writing, coloring, dot to dots, drawing, maze games, hangman games, and more.
      • If individuals are suffering diseases, like Parkinson’s the results over time will alter.
        • “An early indicator of Parkinson’s is a change in the size of a person’s handwriting [AND other aspects of hand work and how it is & has been done over time.] Often, a marked decrease in the letter sizes and spaces between the words becomes noticeable…”
          • This is harder to discern with less samples to compare.
          • If signs are being shown over time, then the sooner the ‘signs’ are showing the sooner treatment can be approached. The record of signs should assist the doctor to help more also.
        • If signs are being shown over time, then the sooner the ‘signs’ are showing the sooner treatment can be approached. The record of signs should assist the doctor to help more also.
      • Ages 40 &/or 50 up to 60 writing, coloring, dot to dots, drawing, maze games, hangman games, and more.
        • If signs are being shown over time, then the sooner the ‘signs’ are showing the sooner treatment can be approached. The record of signs should assist the doctor to help more also.
      • Ages 60 up to 70 writing, coloring, dot to dots, drawing, maze games, hangman games, and more.
        • If signs are being shown over time, then the sooner the ‘signs’ are showing the sooner treatment can be approached. The record of signs should assist the doctor to help more also.
      • Ages 70 up to …? writing, coloring, dot to dots, drawing, maze games, hangman games, and more.
        • If signs are being shown over time, then the sooner the ‘signs’ are showing the sooner treatment can be approached. The record of signs should assist the doctor to help more also.

Rhapsodie’s handwriting, coloring, maze work, and drawing over time with images

[Not done, images are being captured of Rhapsodie’s writing, art, and some other work done over time to compare with the most modern work. BUT that’s taking time which hasn’t been used yet today. Rhapsodie’s writing varies in sizes & styles, at least in some degrees, based on the size of her information and the size of the paper sections OR amounts she has to use. This was much rougher when she was learning to write, but in 6th grade Rhapsodie’s writing was good enough to take notes of a deaf student in that glass after his translator learned to interpret the loops. He could read them right off the paper OR her computer/ tablet/ USB screen.

Trouble Sleeping

https://facty.com/conditions/parkinsons/10-signs-of-parkinsons/8/

Tossing and turning even while deeply asleep can be a sign of Parkinson’s. Some individuals may even fall out of bed during the night. This symptom interrupts sleep patterns and decreases sleep quality, which can exacerbate other symptoms. Half of all people with Parkinson’s disease have muscles that do not completely relax during sleep. This increases the risk of leg cramps and abnormal leg movements at night. Some people even “act out” their dreams by moving their limbs. It is also common for people with Parkinson’s to experience excessive sleepiness during the day [because of not sleeping well at sleep times.

  • BUT Rhapsodie sleeps fine, just super heavy, as well as too much for a normal healthy person at present because of uncared for injuries. Exasperated injuries cause further need for rest to recover and allow more healing for Rhapsodie. BUT her body is so damaged this is very minimal now and it causes more sleep needs.]

9. Constipation [& Leaking Bladder]

Straining to move the bowels can be a sign of Parkinson’s and is also one of the most overlooked symptoms. Parkinson’s affects the nervous system that controls the movement of muscles, so it is logical that it should also affect the bowels and bladder.

  • The bowel can lose its sensitivity and become inefficient, slowing down the digestive process and the movement of waste, leading to constipation.
    • Care is needed to make sure an individual is consuming proper amounts of fiber, so that normal bowel problems are reduced from this assessment. Individuals with other muscle problems will have more knowledge of what is happening, in some ways, than observers who assume they understand without listening to the person suffering something like WHOOPS Disease.
  • The urinary tract actions are controlled by muscles. So leaking bladder is another sign of the muscle weakness that is Parkinson’s disease.
    • Individuals with leaking bladder are more common, but very few of them have Parkinson’s Disease.
10. Excessive Sweating

Parkinson’s disease severely affects the central nervous system. As the disease progresses, changes in the skin can develop. Many individuals with the disease experience excessive sweating or hyperhidrosis for no apparent reason. For women, this symptom can feel similar to hot flashes during menopause. In addition, medications used to treat Parkinson’s disease can cause excessive sweating.

  • Rhapsodie has had some sweating she associates with Menopausal symptoms, but nothing more than that.
  • For the lack of muscle uses the body often finds fat builds up, this can cause excess sweating also, but it does not indicate Parkinson’s Disease most of the time.

[Finding Parkinsons & Treating

The signs above are used by individuals to share with the doctors their Parkinson’s symptoms, but as you read Rhapsodie’s added information you can see how individuals not living with the problems can ‘believe’ Parkinson’s or other problems because of what they think they are seeing. That’s a problem with doctors not treating patients based on what the patients are telling them about things and situations.]

1. Studies and lab tests

Parkinson’s disease is a neurological disease created by the build-up of the protein called alpha-synuclein. The disease creates problems with motor function and movement, rigid muscles and severe hand tremors. Roughly 60,000 Americans are diagnosed with the disease every year, and it affects up to 10 million people worldwide…

2. Previously mentioned actions & possible tests

The drawing, writing, coloring in the lines, doing dot to dot, can be indicators of issues with Parkinson’s. Part of the test involves actions and how familiar they are normally AND different they are with Parkinson’s for individuals. Family members & close friends may note issues, while strangers/doctors may assume issues where there aren’t any. The writing style issues, the dot to dot issues, and more can be ‘faked’ with individuals practicing not to be diagnosed. BUT it’s really hard to take years of evidence and dismiss it no matter what the evidence shows.

In fact it may be useful, especially with older & more experienced adults to ask them to update an older work ‘like’ one that’s not recent and see how they do it. I am not a copying person, I hate redoing stuff, but if a doctor took one of my crocheted yarn doubles from the past and handed me the yarn and crochet hook now, it would take some time to get the stitch style again, but I could repeat it if the pattern was remembered enough to do so.

There are simple sewing, stitching, boot lacing, shoe lacing, drawing, actions that are like riding a bicycle able to be done in other ages, but modified ways also. In addition there are actions like mixing pancake batter by hand/fork/whisk and more that aren’t too expensive trials to do. There’s also that finger string game, I think I remember how to set up the starting pattern still, and only string of a type not too hard OR soft is needed. I just used my double crochet line with the kitty toy at the end to do this setup like I remember.

Other Connecting Posts

Diabetic’s and Treatments

Whoops Disease Info

Additional Connecting Information

Rhapsodie has written about these issues for multiple reasons:

1) To have a shared written record, that’s useful. 2) To provide info to others to assist them in planning to deal with the horrid medical system of the U.S. 3) To hopefully impact doctors & health carers to do more work than just using reports which may be false.

Pain ASSessment Inaccuracies & Health Issues

Rhapsodie’s Visual PAIN Diary- From September 2013 into April 2017

 Rhapsodie’s ideas to improve Medical ASSESSMENTS by doctors

PAIN Variables

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