Me & my speech.


Problems with Diabetes during WHOOPS DISEASE include abnormal sugar results and body actions that impact uses of insulin and diet actions. Because Rhapsodie only noted the information on the previous pages, some which emphasize diabetes aspects with Whoops Disease, more is being shared on this page with details of Rhapsodie’s sugars. Additionally Rhapsodie is adding notes on how to understand the information that’s being shared and how she interpreted that information in regards to Whoops Disease.

Here’s some charted information showing how Rhapsodie’s odd insulin basal patterns were lived since  May of 2019

In the coloring added to these charts the best way to do that, was to put the information on the chart then color it, if I was to run to my computer to add the new numbers without giving time to make sure I’d set the basal accurately I could have colored it up OR down, BUT later would have had to reread and fix the document for what worked.

Understanding the Chart Images Information

Since Rhapsodie made these Excel pages, which she calls Accurate 2019 sugar results, she knows what the meanings are without these definitions, but because you aren’t familiar with the pages she is adding information for your reference in referring to the chart images being shared after. The May into June of 2019 pattern was observed in conjunction with her menstrual cycle and how the pattern is timed at least from the last cycle, BUT males may have the same patterning with no menstruation hassles OR not when it comes to WHOOPS DISEASE  because things are weird.

The up & down basal pattern colors
  • The numbers with the chart basals on the charts there are 2 different basal number types the full hours & the half of the hour averages.
  • The Minimed 670G pump has use options, I’ve chosen to set my insulin with the 100ths showing, this means that I can set more incremental amounts of insulin for better sugar control. With the graph I’m sharing the 100ths (1.00), BUT at times I also share 1,000ths (1.000), so that the hour split by the basals in half are both added to the chart. This means that
    • in this segment of record there are only 2 different basals, but the one hour until the half (30) of the hour was at 1.55 then at the (30) changed to 1.60.

      • Then those numbers are averaged together, so
        • 55 + 1.60 ends up averaging at 1.575
          • Longhand
            • 55 + 1.60= 3.15
            • 15 / 2= 1.575
          • Double Check
            • 575 + 1.575= 3.15
          • BUT at times the averaging is hidden because the numbers going together end up with a 100th proportion not a thousandth. So 1.60 + 1.50 in average equals 1.55.
        • Because of this there the chart shouldn’t be used to ‘know the basal rates’ on the insulin pump.
          • It’s a partial guide, doctors need to scan information of the rows to understand the patterns better.
          • It can be good to get an accurate basal pattern list
            • Minimed’s Carelink reports include the basal patterns with what’s on the pump in the report making.
            • The spreadsheet chart would need additional columns of time added to do the half hours with the chart for more accurate basal changes.
  • The up & down basal pattern colors in this chart are based on the options in Excel, I didn’t change the pattern coloring behind because that’s information corresponding times of day & life, so the colors with the basals are not as distinct for anyone looking at these pages in black & white. For those of you who don’t take insulin, the basal rates are the amount needed to keep alive without any food insulin being taken.
  • May Chart Color Definitions

June Chart Color Definitions

There is more in this section because I saw more layering when looking at this last month of information with the basals.

As time goes on with the changes these colors can shift into the new patterns also, BUT it can not be a reference to the previous information with the same colors. Ideas are to shift the shading color spectrum to make this more differentiable, but it’s not yet complete…

The date & day rows
  • The date & day rows contain my sugar test results with the sugar checker numbers added, but
    • every hour where 2 or more tests were done has been averaged, unless an extreme causes me to use another hour OR to list 2 numbers.
  • The date & days, shown on this chart like this with date & day  as shown which are defining the information in the rows. For your information with Excel
    • the ROWS are horizontal, so going with the information acrossed the page &
    • the COLUMNS go up & down so are vertically defined with column information above & below the shared information.
TIMES of day shown in columns & a time row
  • In this chart are organized with military time from 0 through 23:59:59, so the time row, in grey, shows the times starting with 0 and going to 23, each of those is an hour of time.
  • The columns are colored to work with the AM & PM designations and times of day,
    • So 0 to 11:59:59 is the AM column, in lighter shade on the left. This is from 12 midnight to 11:59:59, before noon.
    • 12 to 23:59:59 is the PM greenish column to the right of the chart, this defines the times from 12 noon until 11:59:59, before midnight.
The sugar result rows are from the sugar checker results ONLY

The coloring with this chart are similar to the high & low colors that Minimed charts, BUT I love seeing the greens because that’s my sugar being right.

The Horizontal RedLines

The horizontal red lines, as you can see with the chart, were placed as indications of when Rhapsodie had the 670G Minimed Insulin Pump sensor turned on.

  • For Rhapsodie with WHOOPS DISEASE the sensor isn’t a reliable source for sugar results.
    • It beeps with disconnects, like when she places her arm over it, like to hold something, or she lays on it, or she sets it under a boob then leans forward the pump loses the ‘sensor’ signal. This means turning it off while sleeping allows sleep without ‘bad beeps’.
      • This water interference is not normal for diabetics without WHOOPS DISEASE, unless they are swimmers OR in the bath for extended time frames.
        • The water interference’s have messed with my sugar in other ways. A Minimed technologist, as mentioned above told Rhapsodie, “I am not a doctor, but these numbers show me that your body is responding a lot faster than this pump is programmed to work with the auto-mode in action.” Also this is part of the reason for the problems with the sensor uses.

Some patterns of Rhapsodie’s Insulin Changes Charted

The spreadsheet workbook Rhapsodie formed is a tool she’s used to keep track of the super frequent insulin changes and how these relate with her sugar levels, she is able to add the Blood Glucose (BG) meter results that the insulin pump charts don’t show. BUT it takes hours each day to add the numbers and interpret the information beyond normal patterns & cycles. The patterns are shifting so often that my chart records aren’t fully accurate, they are based on records I do have and what I remember with times also.

While the spreadsheet can help doctors, for Rhapsodie, she also needs to be watching the insulin pump basal change patterns trying to find consistency for planning future insulin rates. Presently the chart is generally a follow up used to double check her previous patterns, BUT it could help others to set up their patterns if they are aware of things before they get hit with them.

Rhapsodie’s results show odd shifts as you can see from the images. For the basal shifts / changes going back a half an hour is done to make sure that the basal change impacts the body correctly. The insulin change values as results can’t really be observed until the follow day unless additional variations were made before those times because of the previous shifting being information leading to those shifts. With the Minimed 670G the chart that’s available with use of the sensor gives a pattern line that allows the records of when to change better to follow and use.

When the sensor is turned off the sugar tests are the only results of use for the change possibilities. The insulin pump results are not accurate enough for me to trust them alone, that’s why I’ve started appreciating the sensor even though it’s not liked much. So when I’m using the sensor I’ve had to multiply my sugar checking about 3 times more than normal. Part of that could be because of WHOOPS DISEASE changes that are abnormal also such as so much water under the skin which causes the sensor results to be way out of wack. Plus the body with WHOOPS DISEASE holding ‘real sugars’ near the organs instead of on the watery layers filling the body.

May 2019-  09  through 12 Rhapsodie’s Insulin Up & Down Pattern

What these results show are some of Rhapsodie’s mistakes with these patterns, but also how the shifting isn’t normal insulin use. With working to learn the patterns then dealing with the hassles from these is a lot of work done without any profit other than good health.  That’s a good reason to work this hard.

I’m sorry that the numbers are almost indistinguishable on these pages, I hope you’ll trust that my pattern coloring shows the information of the patterns good enough if you can’t read the numbers.

May 2019- 13 through 15 Rhapsodie’s Up & Down insulin Pattern

May 2019- 16 through 19 Rhapsodie’s Up & Down insulin Pattern

You can see that there are time variations in pattern records in these rows of information that are not the same as those in the previous 2 sets of patterns.

May 2019- 20 through 23 Rhapsodie’s Up & Down insulin Pattern

You can see that there are more pattern alterations on this chart, it’s not as dramatic as some of the upcoming patterning when menstrual hassles shift patterns even more.

May 2019- 24 through 26 Rhapsodie’s Up & Down insulin Pattern- with some Premenstrual

There are more pattern alterations on this chart; it begins demonstrating the premenstrual insulin & sugar alterations that are faster than normal. Regularly from my normal body cycle during a premenstrual period my insulin use rises a tenth of a unit for hour over 3 to 5 days. BUT you can see from the High levels previously charted basal insulin was raised over a tenth of a unit in only 2 days.

 

May 2019- 27 through 31 Rhapsodie’s Up & Down insulin Pattern- with ‘the’ Menstrual cycle

As was mentioned previously I’m not sure if men have a weird variable pattern also, it could be the creators of the Nanos added a pattern that impacts women as a pattern hitting men also. This chart begins the day my period started flowing with the insulin going up another 5th of unit per hour which is a time and a half of raise. It’s half more than a normal menstrual cycle rise.

BUT things go even weirder because normally with my periods

  • the highest day with my sugar is the first 24 to 36 hours after my period starts. Then
  • the sugar drops by a tenth of a unit, into the normal range, for the next 3 to 4 days until my cycle fully ends. Then
  • I have 24 hours of another tenth of a unit insulin drop.
  • That ends with my insulin returning back up into the normal range. BUT NOT THIS TIME…

This cycle was 5 days of high basals in a row, yeehah, no ups and downs. BUT the patterns come back irregularly after these ups.

Beginning to End of May Shifts

For May there are changes in insulin uses basal wise are for

  • May 9th the amount of basal units at 34.58 per day BUT
  • May 31st with 39.55 units of base insulin per day,

that’s a difference of almost positive 5 units per day which is way different than normal changes which are about a maximum of only 2 units per month up and down with menstrual cycles AND other activity change cycles that are more normal. With activity levels going up more normally with better weather these patterns should be going lower, but they didn’t. Here are those summary sections from:

Early May with Basals first in Spreadsheet Records of Rhapsodie

Late May with Basals of Rhapsodie’s Records

These insulin changes are some of the first Rhapsodie has put into record in Excel, so there aren’t earlier comparisons. As you can see the dramatic changes in insulin aren’t normal, and these patterns of changes as mentioned above were abnormal enough with Whoops Disease, that Rhapsodie started making these records of changes for references and for sharing with you, who may be suffering Whoops Disease and diabetes.

For all of these patterns changes continue into June shared on the next post, called WHOOPS DISEASE- 7b3. Problems with Diabetes & JUNE Details.

Other Connecting Posts

WHOOPS DISEASE-1. Animals

WHOOPS DISEASE-2. Females

WHOOPS DISEASE- 2b. Water Weight Chart Comparisons

WHOOPS DISEASE-3. Males

WHOOPS DISEASE- 4. More!

WHOOPS DISEASE-5. Nano Mites?

WHOOPS DISEASE-6. Treatment Ideas & Facts

WHOOPS DISEASE-7a. Updates on Continuous & New Symptoms & Some Treatment Issues

WHOOPS DISEASE- 7b1. Problems with Diabetes

WHOOPS DISEASE- 7b2. Problems with Diabetes & MAY Details

WHOOPS DISEASE- 7b3. Problems with Diabetes & JUNE Details

WHOOPS DISEASE- 7b4. Problems with Diabetes & JULY Details

WHOOPS DISEASE- 7b5. Problems with Diabetes & INFO updates

WHOOPS DISEASE-7c. Cure for Diabetes

WHOOPS DISEASE- 8. Treatment Issues & Action Options

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