Me & my speech.


Many of the issues with diabetes aren’t being discussed here, just how WHOOPS DISEASE really impacts diabetics, people possibilities to get diabetes from WHOOPS DISEASE, and people with WHOOPS DISEASE have greater hassles with their diabetes if they have it. Some aspects of these pages will be shifted into new pages, but not at the moment, sorry for the massive size of this document which still needs fixing for readers.

New Diabetics…

with issues of previous diabetics also.

Some people get diabetes with WHOOPS DISEASE, eventual ‘cure’ treatment for WHOOPS DISEASE should take away the ‘new diabetes’ AND possibly the ‘previous diabetes’ also.  The diabetic issues of Rhapsodie are probable with the new diabetics also, BUT the possibility of returning to normal after WHOOPS DISEASE is ‘cured’ means that the diabetes problems will go away also with those people. This is different for people who have had diabetes.

Previous Diabetics

Rhapsodie has been type 1 diabetic since she was 5, so she reads these symptoms versus her diabetic normality’s.

Sugar & Insulin Use Records

Rhapsodie has, recently, formed a spreadsheet to keep track of the super frequent insulin changes and how these relate with her sugar levels. BUT it takes hours each day to add the numbers and interpret the information beyond normal patterns & cycles. While the spreadsheet can help doctors, for Rhapsodie, she also needs to be watching the Minimed 670G Insulin Pump graph patterns. It’s not the easiest thing in the world and it’s continuous work.

As is mentioned below the coloring added to these charts could be done hourly, but it’s not at present for Rhapsodie the best way to do that. The basal change colors are based on basal (underlying base uses of insulin for life without food as a factor) insulin amount changes. Using the comparisons from the previous days makes it easier to determine how to color versus doing it as the basals are being changed. Other insulin pump systems and sugar checkers could make this easier if the graphs are accurate enough to utilize AND if they are keeping basal rates in record with the other information.

Some insulin pump options & sugar checker options, like the CGM systems which may OR may not be insulin pump integrated, also have graphing which may allow memory systems to keep records of the basal patterns corresponding to living with diabetes also.

CGM Information

You can find information using the search engines you prefer to find

  • CGM’s; OR Continuous Glucose Monitors involve poking into the sking so they aren’t loved OR really even liked by me causing more holes in my body every time they are used.
    • The NO Prick Sugar Checkers, I’ve located in research are really not ‘approved’ by the United States FDA maybe comments can cause them to do more approving. They haven’t approved the 3 I like the most yet, but with checking my sugar up to 23 times a day recently, then poking in the sensor device, then poking in the insulin needles regularly my body is more scarred than not from needle pricks. The ones I like may OR may not be able to be linked to insulin pumps, they may OR may not be able to share that information gotten with computer systems but some of them have that available with NO PRICKING AT ALL! More No Prick Links below!

AND

But here are some links to options I’ve heard about and have observed on occasion.

Some Insulin Pump & CGM Connected Options

Other Pricking CGM options without insulin systems connected

No Prick Glucose Monitors which may work as well with CGM &/OR insulin pumps

  • GlucoTrack– Clips on ear for readings AND may be approved already with the FDA
    • Clips on ear, reads the numbers within one minute, uses a combination of Ultrasonic, Electromagnetic, and Heat capacity. (thermal) for reading the sugars and allows USB connection to cell phone, tablets, computers for charting the information, and will allow numbers to be added manually to the pump. Problem only reads when used, but that’s fine for the use with the sensor & the ear clip may hurt in repeated uses over weeks, months & years of time.
  • CNOGA– BG meter is NOT approved by FDA for blood glucose monitoring. BUT their other machines offer that as an option with the devices, but the programming needs to be loaded for this option to be active-
    • VSM- Vital Signs Monitor
      • VSM intended to suit the customers specific needs and includes 3 versions according to customers’ requirements. The basic VSM measures 3 bio-parameters includes Pulse, Blood pressure and Oxygen saturation (SpO2). Additional parameters such as Blood gases or Hematology parameters can be added to the device [BUT you need to ask, to get those, the U.S. FDA has not approved this for sugar checking.] VSM approved for marketing in more than 37 countries (Certifications: CE, CFDA , Anvisa).Cnoga Medical is the only company in the world approved by the U.S FDA for cuff less monitoring of blood pressure & Pulse
        • Pulse
        • Oxygen saturation (SpO2)
        • Continuous, Non-invasive Cuff-free Blood Pressure
        • [BUT NOT for sugar checking yet!]
    • COG- Combo Glucometer (CoG) [Not U.S. FDA approved, stupid]Place your finger, close the lid and measurement start automatically …within 1 minute.
      • Non-invasive Glucometer
      • No pricking, No pain
      • Personal Device
      • For Adult Diabetics (age>18)
      • Suitable for Type1 and Type2
      • Small and Lightweight – ˜100g
      • Compact and Easy-to-use
      • Unlimited usage life
      • 500 Measurement memory
    • MTX- Matrix Monitor- approved in U.S. but super complicated for simple glucose measures because of the multiples tested at one time
      • Continuous, Non-invasive and Cuff-free Blood Pressure
      • Non-invasive Hemoglobin,
        • Hematocrit, and
        • RBC
      • Non-invasive Blood Gases (Ph, PCO2, PO2, O2&CO2 Content)
      • Non invasive Cardiac Output , Stroke Volume, MAP
      • Less than 60 seconds test
      • Four LED lights shine wavelengths from visual light to infrared light through the fingertip.
      • As the light wave pass through the fingertip, some of it is absorbed and the light signal is changed.
      • Next, a camera sensor detects the changed light signal in real time.
      • Using patented algorithms and a vast amount of data MTX analyze the correlation between the signal and bio parameters
  • Gluco-wise– In development
    • can be used on ear OR with hands using radio waves and totally non-invasive, but still in testing, can allow the numbers to be manually added to the pump. Problem only reads when used, but that’s fine with the sensor for pump in use also.
  • GlucoTrack– Clips on ear for readings AND may be approved already with the FDA
    • Clips on ear, reads the numbers within one minute, uses a combination of Ultrasonic, Electromagnetic, and Heat capacity. (thermal) for reading the sugars and allows USB connection to cell phone, tablets, computers for charting the information, and will allow numbers to be added manually to the pump. Problem only reads when used, but that’s fine for the use with the sensor & the ear clip may hurt in repeated uses over weeks, months & years of time.
  • Diabetesnet.com- Lightouch non-invasive glucose monitoring device
  • More No-Prick Options Info

Rhapsodie’s Insulin Changes & Sugar Hassles with WHOOPS DISEASE

For Rhapsodie’s life with WHOOPS DISEASE and insulin changes having records of Blood Glucose (BG) tests for accurate uses she has built an Excel Spreadsheet chart . For her it’s generally a follow up used to double check her basal & sugar record patterns, BUT it could help others to set up their patterns if they are aware of things before they get hit with them.  A technologist reviewing Rhapsodie’s problems with the ‘auto-mode’ option of the 670G told her, “ I am not a doctor, but these numbers show me that your body is responding a lot faster than this pump is programmed to work with the automode in action.” This has meant my actions NOT using automode have kept me healthier.

Sensor Issues

I’ve been using the Minimed 670g insulin pump now for over a year. The issues I’m having with the pump are due to a bad pump with not using the automode, Insulin deliveries are fine with automode only, the delivery rates vary when manual mode is used. Less delivered early AND late in the reservoir. This means the only way that pump works accurately with insulin delivery is with automode. For individuals with WHOOPS DISEASE this means that system is unable to work properly at all.

The sensors for use with the pump are similar to other systems which means that the issues I’m having with the sensors could be had by others using different systems for sugar measuring that are taking readings from the interstitial fluids, under the skin, layers of water. More info on sensor readings in interstitial fluids of body.

Because of the high moisture content of my body, with WHOOPS DISEASE, being way more than normal, maybe even 20 to 30% higher than normal, the sensor system of the 670g hasn’t been able to keep my sugars accurately since I got the pump. The areas of the sensor application have diminished a lot more the closer to ‘death’ I go. The issues that were allowing uses of the sensor on my upper body only, have now been reduced to approximately 16″ by 1″ total available in 4 areas on my breasts. I’m female though, so males may not have that much space for sensor uses.

With the sensor unable to read accurate interstitial ratings because of the water mass variables with WHOOPS DISEASE it means that automode is unable to work safely OR accurately. The Minimed 670g, sensor readings are supposed to be less than 20% wrong on all uses, with WHOOPS DISEASE I generally have had between 100% to 18% wrong in the most normal use locations, which are not the non-special locations I’ve located, ever since getting the sensor. This means for people, with WHOOPS DISEASE, using other continuous glucose monitoring (CGM) devices like:

are likely to suffer sensor accuracy issues that require blood glucose monitoring to remain healthy as well as blood tests to make sure systems that work like the 670g in automode continue doing the correct insulin work.

For me the sensor inaccuracies wouldn’t kill me, they just cause a lot of issues with getting and keeping my ‘goal’ range accurately. For instance:

  • If the sensor reads the sugar as being low, I’ve had it read me at 55 when my sugar is at 91, in automode, it will stop the insulin because it will not accept the accurate blood test reading. In manual mode it can only put out a warning OR do an alarm, which it will also do in automode, but because the sensor reads the sugar in the interstitial fluids wrong it can cause other issues if a person uses a sensor insulin delivery system.
  • If the sensor reads the sugar as being low, like 168 when the blood test reads the sugar at 229, then the correction insulin supplied is way too little to be accurate. This amount of insulin variance is because the sugar result is 59 WRONG, that’s an amount of 36% wrong which means inaccurate sugar care work in ‘deliveries’ to bring sugar rates back to goals. For me with the present insulin correction rates being 1 unit for 23 of a sugar amount, it means there would be about 2.5 units of insulin not delivered which was needed to correct my rates to the accurate goal range I have.

In addition to the these issues and factors, because my body is so high in fluids and so low in fat, there is a sped up food and processing, which means that my sugars fluctuate faster than normal with uses of insulin AND with food ingestion. This means the setup with the insulin pump for insulin delivery is still accurate, but my body consumes food too fast for the autosystem to keep up with the fast shifts and changes of my sugar rates.

Finger Pricking Hassles

I don’t like other features of automode also, but Minimed does take comments and put them on record, so some of my suggestions have worked, my sugar reports through their systems now include more of my finger prick measures.

  • I’m pricking my fingers about 11 times a day, that’s a big problem with the sugar hassles, because my skin is dryer and scarring is greater.
    • I try to remember to change my fingers regularly, but this sugar checker is a problem for using my lower ears, BUT you might find pricking your lower ear lobes works well with less finger pricking needed. The pain sensors at the lower ear lobes are less than on the fingers. The edges of the ears beneath an earring hole are better locations than higher, because pain sensitivity goes up the higher up the ear, the closer to ear stiffness you get.

Other WHOOPS DISEASE Sugar Oddities & Hassles

I’m sorry everyone, I’ve only been handling the diabetes by Minimed Insulin Pumps for over 20 years. That has meant, with more recent machines, my sugar checker in communicating with the pump have allowed my doctors some records to use. BUT I haven’t taken the time with WHOOPS DISEASE to chart the information too accurately until just recently. AndI don’t get all the information in record with changing basals on an hourly basis at times. What I share here is only based on my memories of the more recent sugar hassles.

Over 4 months ago

  • Take a bath in one week and every time sugar drops;
    • The week later take a bath and every time sugar goes up to 203 to 206.

Over 2.5 months ago

  • Other weeks of sugar oddities-
    • 5 days 1 unit up, a pause, 5 days 1 unit down then
      • a break of 5 weeks
    • 3 days 1 unit up, a pause, 3 days 1 unit down repeated for 3 days
      • followed by a larger break of 3 weeks then
    • 1 day a unit up & 1 day a unit down for 7 days…

Previous Last menstrual cycle pattern (possibly for men also)

This may be a time cycle that impacts men, that is similar to the timeline of a menstrual cycle, which is normally a 28 day pattern. But my pattern, abnormally, has been running with 23 days for over 2 years now and the doctors believe my thyroid is accurate and that can be part of the WHOOPS DISEASE cycle patterning which may impact men also. For me, a female the maximums & minimums with changes may be comparable with men based on their rates, but there may be changes that are multiplied OR not for men in some of these change cases. Generally the changes are based on insulin uses by mass and activity, but this may OR may not be the case in these comparisons because the Whoops Disease is shifting things.

Normally after my post cycle day of sugar dropping, the following month of time is normalized with a sugar rise between 24 & 72 hours around my ovulation cycle which causes a sugar rise for a tenth of a unit of basal per hour during that time. BUT this was not a normal cycle, MY BASALS WENT UP over the cycle, here’s what I found living with the up and down shifts:

  • Up & Down Basal Shifts

    • These started, this last cycle about 18 to 23 days before my period, I don’t have records earlier than that. BUT with a 28 day cycle with a 5 day of period, that leaves exactly 23 days for the pattern to ‘develop into notice’. These happen at a specified time of day, for me shifting the insulin a tenth of a unit every ‘hour of change’ for a pattern that’s for that day, but I have 4 different patterns for 4 to 5 days in a row with this cycle of shifting.
  • The first cycle I have on record are from 3am to 3pm with basals down THEN from 3pm to 3am with basals up, BUT this isn’t an everyday pattern, it keeps changing with a pattern of action.
    • 3am to 3pm & 3pm to 3am– I think I was up by a twentieth to a fortieth with the insulin, meaning my lower basal around 33 units of insulin per day was up to over 37 units per day at the end of this cycle pattern ONLY dropping with the Post menstrual spikes.
    • For men I don’t know if the patterns would be similar OR not, since there is no menstrual cycle to find time from with
      • Down & Up Patterns are weird post menstrual, of the previous month, to mid- month they are from 3am to 3am (03:00 to 03:00) alternating up & down at 3 day cycles.
      • Down & Up Patterns are weird, pre- menstrual after mid-month, they start from 3pm to 3pm (15:00 to 15:00) alternating up & down- going down to every other day to every day until they go up during the period.

Last menstrual cycle period pattern (possibly with similar patterned effects for men also)

This last menstrual cycle pattern isn’t in images below, but they may be added soon, BUT for people with diabetes AND WHOOPS DISEASE this may be a pattern that impacts them eventually also. With the last cycle sugars kept going up, so basals kept being raised. This last cycle beginning 2 days before the period bleeding started was at a high peak, it went down over 10 basal units per day in 7 days through the menstrual cycle into the last day. The time of change impacts were 6am AND 6pm. BUT today, 6-24-2019 everything has slightly leveled, the basal rates paused, but are now dropping again.

Records of Rhapsodie’s sugar results with this period of Whoops Disease are being placed on additional pages divided by months for time references.

Plus this information separated that way can make it easier to relate the information to yourself if you are noticing similar patterns. I hope that information can also be a guide that will assist you to be more prepared in dealing with these hassles as they come about.

Other Connecting Posts

Please beware they are grouped based on a style of topics.

Diabetic’s and Treatments

[Sorry posts still need dividing & completing for better online reading.]

Whoops Disease Info

Additional Connecting Information

Rhapsodie has written about these issues for multiple reasons:

1) To have a shared written record, that’s useful. 2) To provide info to others to assist them in planning to deal with the horrid medical system of the U.S. 3) To hopefully impact doctors & health carers to do more work than just using reports which may be false.

Pain ASSessment Inaccuracies & Health Issues

Rhapsodie’s Visual PAIN Diary- From September 2013 into April 2017

 Rhapsodie’s ideas to improve Medical ASSESSMENTS by doctors

PAIN Variables

 

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